I am 14 weeks pregnant and undergoing the D&C tomorrow. We found out last week our baby had a giant omphalocele (the organs were growing outside the abdominal cavity) The doctor's told us a giant omphalocele as 40% of the trunk of the baby, but ours was 100% the size of our baby's trunk. It was discovered at a nuchal translucency test at 13 weeks. We had a second opinion at children's hospital and today we found out the baby didn't make it due to multiple organ failure. We are very much at a loss today and currently they have inserted laminira sticks into my cervix to help dialate me safely before the D&C. We are devastated as this is our first pregnancy and we have been struggling with infertility for the past year now. We want to try again soon but we are waiting until 3 months to allow my body to heal and our hearts to find some sort of peace. The doctors said that would be safe. I am just worried that we will struggle again for another year or more due to the PCOS. We are not looking forward to this feeling as we had a hard time last time dealing with that stress and now to add this loss on top of it. It's hard as they consider this a 2nd or mid-trimester miscarriage and the body didn't expel it on its own so we have to undergo outpatient surgery. We had waited for 12 weeks as the doctor's told us we were out of the woods on miscarriage and could share our news with everyone. We followed up with a normal screening test and had no idea that they would find this defect (1 in 10,000). We have to wait for genetic testing. We want to have a family and I am not looking forward to struggling with infertility again. How long before people got their cycles back or before they got pregnant again? Any similar experiences?
My baby's defect had nothing to do with PCOS but I feel that the PCOS will complicate us starting over.


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She turned my way of thinking that, yes, PCOS sucks but it makes me appreciate the small successes a bit more than "normal" people. Best of luck to you!

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