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  1. #1
    Registered User TinyPastels's Avatar
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    Default Or is it Premature Ovarian Failure....?

    Question! How do we know it is PCOS and not Premature Ovarian Failure?

    I've been managing PCOS since I was 16. I am now 24. I have good insurance to see the doctor, but they're never a ton of help. I've been on birth control, hated it, went the au natural method of diet and exercise...lost weight. Then my periods just STOPPED two years ago. Had to get Progestin to bump it back up...was fine...periods slowed down again...year later, STOPPED. Prescribed Provera for less side effects, and my body just refuses to have a real period. Three days light bleeding IF I'm lucky (usually not) but nothing is really fixed. I can go as long as I want without a period!

    I have night sweats, foggy thinking, forgetfulness, thats just the beginning! But just about every symptom of menopause. I have phantom periods too! Didn't know it existed, I thought it was just me! I will get ALL the sensations down there like I'm about it start within hours (hot insides, passing air, bloating, distinct smell, sorry TMI haha) then it just goes away! 35 days later same thing! Only happens sometimes. Thats a symptom of menopause, not PCOS I don't think.

    2 years ago, my prolactin was low, FSH high-normal, and testosterone high, (glucose normal). Took progestin to jumpstart period even though 17-hydroxyprogesterone was normal.

    The doctor just went by the testosterone to confirm it was PCOS acting up. Now it's been two months without a natural period, and I'm wondering, should I bite the bullet and do another round of Provera?? Or should I just go to the doctor? They treat me like I'm overreacting and should take my meds...do I present a case here? Any experiences?

  2. #2
    Registered User brideofmonkey's Avatar
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    Just a thought- when I went on Clomid, my RE said that we needed to treat my high testosterone or it could prevent ovulation (and of course any periods). Have you taken anything to try to bring it down?
    Gretchen, age 31, DH age 38
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  3. #3
    Loving my life! praying4more2's Avatar
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    I was mis-diagnosed with PCOS for almost 6 years before I found out I had POF. My diagnosis came from an FSH reading of 100. Yes, you read that right. I had been given provera to induce a bleed and when the 2nd dose didn't work, my RE tested for it.
    I've heard that AMH is a better predictor than FSH, but definitely have a full battery done.
    Do you have an RE? I see you mentioned doctor, but wasn't sure if it was an OB/GYN or an RE.

    I had it all... night sweats, fogginess, missed cycles (for a year or more).

    As it stands, I haven't had my cycle since July 2012.
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  4. #4
    Registered User beauty1216's Avatar
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    I often wonder the same thing. A lot of my symptoms are similar to yours. I developed night sweats the day i gave birth to my daughter. I was told it was normal postpartum issues and that it would resolve. It never did.

    I did some extensive research on Premature Ovarian Failure and PCOS. The symptoms are identical. Many patients have been told they have PCOS when it is really POF and vice versa. From what I have read, it is almost impossible for some doctors to differentiate. That is what makes it more complicated.

    I know plenty of women on this board are wondering the same thing. This question often pops up. A good friend of mine has POF. She was misdiagnosed with pcos. POF runs in her family. I believe many cysters have a valid point when wondering if a pcos diagnoses is accurate. A lot of women get a pcos diagnoses, then doctors refuse to look any further at other possible illnesses.
    Last edited by beauty1216; 03-14-2013 at 07:57 PM.

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    Registered User kscajohnso's Avatar
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    While i cannot say whether or not you have POF, I can say that I had brain fog, dizziness, forgetfulness, and irregular periods that eventually turned into no periods. I have never had my hormones checked out thru blood tests. But I was diagnosed with PCOS after symptoms presented and an ultrasound showed numerous cycsts. For a whole year I googled everything I was feeling and it always came back with either ovarian failure, or PCOS. I was scared to death! Anyway, I started on MEtformin in December, and already have my cycles back. Above and beyond that, I have no brain fog, dizziness, or forgetfulness anymore. I had it so bad that it was affecting my daily activities and my job as well. I could slowly feel it tapering off the first couple of months, and now for an entire month I have felt NONE of those feelings. I'm not sure if docs prescribe Met if not TTC, and I was not IR so I am sure they would question it. But I would def consider it. It has totally brought me back to life

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    Feet on the Ground defygravity's Avatar
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    I don't know that the symptoms are entirely identical, but I would ask for a full Day 3 hormone panel (after inducing) including AMH. Those will give you better ideas on ovarian reserve.
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  7. #7
    Registered User beauty1216's Avatar
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    Quote Originally Posted by defygravity View Post
    I don't know that the symptoms are entirely identical, but I would ask for a full Day 3 hormone panel (after inducing) including AMH. Those will give you better ideas on ovarian reserve.
    I meant to say the symptoms are *almost identical. I don't want to mislead anyone, but the symptoms are so similar, both diseases are commonly misdiagnosed. I also agree that a 3 day hormone panel is needed.

  8. #8
    Follistim Lover PetiteFlower's Avatar
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    The symptoms may be similar, but so are lots of hormone disorders. What will NOT be similar is the hormone panel. PCOS is usually marked by high LH and low or normal FSH. AMH will usually be high and so will anteral follicle counts. POF will have high FSH, low AMH, and low follicle counts. It is possible to have both, but more commonly women with PCOS have a very good response to meds because our ovaries are primed and ready, just been unable to release eggs on their own.
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