SUPER high DHEAS levels:terrified!!

[debster]

hello everyone!

i am brand new to this site. i am actually *hoping & praying* i have PCOS (weird huh) and not something worse.

LONG STORY SHORT: i got my bloodwork done (havent been able to get PG, i am 34 yrs old)

and my DHEAS level was 698! (mcg.dl...normal is 52-400) everything i read said 700 + is a sign of a tumor!

my endo thinks it could be PCOS, though: here is why
1.adult acne!
2. irregular periods (i am charting and i seem to ovulate 10 out of 12 cycles, cycle lengths of 31-40 days)
3. LH was 4.0 but FSH was less than 1!! (bad ratio)

ALL OTHER LAB RESULTS WERE NORMAL.................

anyone have any experiences with high high DHEAS?! i cant take the "dex test" til i get AF (to be sure i am not PG....) (which is also scary, what if i got PG with this outta control DHEAS level??)

~thanks in advance!!its good to be here!!
deb

[CathyWood]

Hi Welcome to SC. Glad you found us. Sorry about your levels. Contact me if you wish.

[Rosie1028]

I wonder if I should be freaking out, my levels a few weeks ago was 922 or something. My doctor didn't seem to be worried about it at all. I am going back on Friday to have my thyroid rechecked. I will defineatley ask him specifically about this!!!

[debster]

rosie you sure that was DHEAS level?

[Rosie1028]

I have the lab papers right here and it says "DHEA 932" it also has ranges for someone my age.

Female- ages 20-29 162-995
30-39 112-722

I had these tests done the last week in October a few days before my 30th birthday. Do you have any more info on DHEA's? I did a google search and all I got was stuff on supplements.

I have an appointment on Friday with someone different in the office.

[debster]

that must be different because normal for DHEAS (the s stands for sulfate) -- the highest you can go is 400.

i am still waiiting for AF to arrive so i can fix this stuff!

[Rosie1028]

I am wondering if it matters on what day of your cycle the test was done on. I printed out some articles to take to the doctor. It did say in the articles that I read that women with PCOS have higher levels.

Is there anything you can do to lower your levels??

[nancidotcom]

I'm right there with you guys and currently finishing up ruling out an adrenal adenoma.

In June I had a DHEAS level of 709 repeasted for accuracy was 711 I was referred to a medical endo for further work up and had a total cortisol level of 14.0 which was in range, a free urine 24 hour cortisol level of 107 H range is 20-90 and ACTH level of 40 which was normal. When I went back to my fertitily specialist he repeated my DHEAS and testosterone (June was 107) and both levels came down a little DHEAS was 689 and Testosterone 67 why they came down I have no idea I have been on Met over a year. Anyway long story short I had a MRI of my adrenal glands (2x) they called me back after the 1st for more views and I am awaiting the call from my doc. He did the MRI to be "sure" if ok we will most likely start the Dex. I am looking forward to having this resolved and getting that level down my view is even with PCOS values that high I would think should be addressed somehow...

[debster]

NANCI its nice to meet you! i have been doing acupuncture and chinese herbs and my cycle is dramatically improved, nice "normal" cycles, ovulating, too! it's a miracle!

about the DHEAS--->it doesnt matter when its taken (according to my endo)....it signifies adrenal issues....she is going to give me a dose of dexo--something and test my blood again. if it works to bring it down i think that rules out the tumor thing. i found out i have some adrenal issues in my family. also that ashkenazi jews have a much higher rate of this stuff too ----

i will let you guys know more later!