could I me missed diagnosed

[momalley]

I was just diagnosed last week with pcos (June 5th) by my gyn. I spoke with my family doctor. She seemed very surprised. She told me that I'm not the typical pcos patient. She said overweight and very hairy. I'm neither of these. My periods are running 37-40 days apart. Except for the last one which never came as of 66 days and my gyn put me on provera that brought it on after 12 days. Got AF today day 40. Just started met 500mg 2 days ago. I'm working up to 1500mg within the next 2 weeks. My fhs level is at 4.2 my lh level is at a 22.8. My gyn said that the lh level is 5 times too high. Wants to see if the met helps before we start clomid.

[cjboo1]

Well you're numbers are "indicative" of PCOS. Which i believe means that yes you have PCOS you may have atypical pcos. Its not unusal to be a thin cyster or wether you have hirtruism. Do you know if you have cysts?

[momalley]

I'm sorry what is a hirtruism? I don't believe that I have any cysts. My gyn seems very unconcerned. I asked him before I left his office last week to discuss the dx What should I do next? He said just call me in 3 months or so. Is that normal? Should I be having any other test done? All I had was the progestrone test. I'm sorry I have so many questions.

[KatCarney]

Check out the information here on the tests:
http://www.soulcysters.com/do_have_pcos.html

While many women with pcos are overweight and have excess hair, it's inaccurate to say that most are overweight and "very" hairy.

[Jane8660]

Hi, I am a thin cyster and was originally told the same as you "No way can you have PCOS you are not fat & hairy" (very sensitive I know but thats what was said).

I am hairy, although I use so many products its not immediately obvious.

I ended up giving the gyn a miss and going straight to an RE. An ultrasound showed cysts (more then 30 on each ovary), the FSH-LH thing, and elevated androgen & high cholesterol. However for no apparent reason my periods are pretty regular now around 5 to 8 weeks. (And tests show I am ovulating).

Have you gone to an Reproductive Endocrinologist? They should perform the full bloodwork (which my gyn didn't) and do an ultrasound.

My RE said to me only yesterday that her personal belief is that there are many "types" of PCOS. That because they share similiar symptoms they have been lumped under the same group but in time & with more research she believes there will be better categories of the condition. She thinks my is a relatively 'mild' version.

Good luck & check out the Thin Cysters Forum.

[KatCarney]

My RE said to me only yesterday that her personal belief is that there are many "types" of PCOS. That because they share similiar symptoms they have been lumped under the same group but in time & with more research she believes there will be better categories of the condition.

Current 'categories':

Usually the diagnosis includes both anovulation and androgen (testosterone) excess but many related conditions have become lumped together in the literature under the term polycystic ovarian syndrome. Woman with polycystic ovaries on ultrasound do not all have androgen excess, but insulin resistance is manifest in equal frequencies whether or not there are elevated androgens (11). Because of this mixed clinical picture, those conditions all collected under the term polycystic ovarian syndrome in the medical literature may include:

1) traditional PCOS -- anovulatory, increased androgens, no insulin resistance

2) endocrine syndrome X -- anovulatory, increased androgens, insulin resistance or type 2 diabetes

3) non-traditional PCOS --anovulatory, normal androgens, obese, insulin resistant or type 2 diabetes

4) non-traditional PCOS -- ovulatory, increased androgens, mild insulin resistance

5) idiopathic hirsutism -- ovulatory, increased androgens, no insulin resistance

SOURCE: http://www.wdxcyber.com/dxinf001.htm

[momalley]

Thank you for the info. I think I will look for an RE. This message board is wonderful. It's great to know that your not alone.

[Cameryn]

You mentioned you didn't think you had the cysts--a vaginal ultrasound will answer that question...some do, some don't. I'm thin, without hirsuitism (extra hair on body), but I have thinning hair on my head (another symptom). We come in all shapes and sizes!!