UK Cysters - Out of interest, who diagnosed you?

**paddy** · 03-09-2008 06:44 PM

For me it was a not fully qualified GP... I'm eternally grateful to her for picking it up so quickly as about 4 doctors had previously missed it. Quite how they missed it I'm not sure cos is blatently obvious!

What about you?

**Buffy2008** · 03-09-2008 06:55 PM

Well, I wrote an extensive letter to my GP with my symptoms, I only wrote to her because I was worried I was going bald.. losing ridiculous amounts of hair.. I'd already done some research online and whittled it down to a few things that I thought I could have.. which were hypothyroidism (As it's in my family) and PCOS..

I had a nurse come out and take blood for testing and then my GP called me to tell me that my blood tests confirmed that I had PCOS. She was like "Good news is, you don't have hypothyroidism, diabetes or anemia (Which she tested me for too, convinced it was one of those) but it seems you do have polycystic ovary syndrome.. and in your situation, I know you're not able to have a scan right now, but if it's alright with you I'd like to start you on a course of medication which should help your symptoms."

So, I agreed.. and was put on Metformin 500mg and Dianette. Been a month and a bit now since DX.

**junior_j** · 03-09-2008 08:46 PM

My mum believe it or not i used to be so thin as a child and short then when i was ten i had major heavy Af's and gained 3 stone in a year despite being a active child - she researched it loads and went to the doctor and just to shut her up he done a scan bang there was 36cysts sat on my right ovary then bang my blood test revealed i had it as well as i high testosterone lol. So i was referred to a gyno who was a bleepipity bleep bleep! Lol and now my doctor deals with it for the mo
Jess x

**Eva37** · 03-10-2008 05:58 AM

well, i got dx by my gp. I had to change gp surgery to get any sence though. Then he sent me to Gynae clinic - who confirmed my pcos, then they referred me to Endo clinic

eva

**Sarah Louise** · 03-10-2008 06:49 AM

My Gynae diagnosed me with it, he gave me a leaflet and told me to come back when I had lost about a stone in weight !!! grrrr yep as you can tell he was very helpful !!

**Eva37** · 03-10-2008 06:51 AM

oh goodness! they ALWAYS say about the weight - i was told that for years........... Then i did lose weight (cos of cutting out wheat) -so they cant say that any more. So now they dont say much.
eva

**Sarah Louise** · 03-10-2008 06:57 AM

Originally Posted by Eva37

oh goodness! they ALWAYS say about the weight - i was told that for years........... Then i did lose weight (cos of cutting out wheat) -so they cant say that any more. So now they dont say much.
eva

Grrrr and I was only 154 pounds back then !!! which I dont think is too bad ............. well not as bad as I am now !! LOL

**junior_j** · 03-10-2008 08:40 AM

I was told that lol 'we cant do anything until you loose weight.'
Jess x

**sarah jane parr** · 03-10-2008 04:38 PM

I was diagnosed by my gp, a couple of years ago. My gp is female and when i explained to her about some of my symptoms, she was shocked that i had been complaining since i was 19!!! I always saw men drs. I don't really trust male gp's anymore.

**PollySis** · 03-10-2008 04:39 PM

Took me 8 years to get pregnant (although I had a couple of miscarriages), but because I don;t like hospitals, drs, etc I never actually went to my GP for help.

Then I got pregnant after 8 years, but still no doctor. I had the worst miscarriage ever around 10-12 weeks after being on teaching practice and catching chicken pox off one of the germy kids. Luckily it was the last day of my TP, so the kid - who was really fond of me - never found out, or she'd be feeling guilty to this day, I imagine. Anyway, catastrophic miscarriage like something out of a horror film. Still I didn't go to the doctor. Told DH to only bother if I got a high fever or passed out, in the days that followed and as I didn't - no infection, so stayed away from doctor's. Anyway, 10 more weeks passed and I realised I was still pregnant. At which point I finally DID go to hospital and they told me I'd miscarried my baby's non identical twin.

Then the whole story came out and the maternity hospital persuaded me to go for investigations after baby was safely born. So when he was born, they sent me to the local Women's Hospital and the consultant there did all the bloods, scans etc and said it was PCOS pretty quickly. She seemed very upbeat and said at least it's something we can work with. One round of Clomid and son no 2!

Concieved 3 more babies and couple more miscarried babies, with no more medical intervention. The pregnancies seriously messed with my weight though - went from size 6-8 to size 22. So since then have used diet and exercise and herbs to self medicate, which has worked really well.

**Purple_monkfish** · 03-11-2008 07:44 AM

A private Gynocologist who specialises in Endochornology (though endometriosis was his speciality). I was sent to him finally after gp after gp sent me away with painkillers telling me my pain was "normal" and I was just some sort of pathetic wimp for not being able to cope with af.. bah.
I explained all my symptoms which sounded more like Endo than PCOS and got all the tests done first through the nhs (which messed upand didn't do the right tests) and then privately through the bupa clinic which cost a bit. It was worth it though, after waiting years I had an answer withing 24 hours of getting blood taken! My fsh and LH were so low I wasn't ovulating, they were reversed which is characteristic of Pcos and my overies had cysts. He wanted to do an exploritory to rule out a double whammy of endo and pcos but we never got round to that. I started met and within weeks I was feeling normal. it was like some sort of miracle had occured. No more pain, regular cycles, an answer.
I'll never forget the look on my gynos face when I told him I was pregnant, hahaha.. he was SO HAPPY.

**donniedodo** · 03-11-2008 01:35 PM

I was dxed by my GP when I complained of the time between periods getting longer and longer, it was a 6 months between them when I had my first appointment with her.

She sent me for blood tests which confirmed it after my first appointment 12 months ago. I haven't been referred to an endo yet, since I'm not ttc and all I want to do is get the symptoms under control at the moment. The Yasmin and Vaniqa that she prescribed seem to be doing just that (but slowly!), and my GP is great anyway, she isn't one of those "losing weight will solve all your problems" doctors. She said to just let her know if/when I would like to be referred, or when we decide to ttc, so I'm happy with the way it is at the moment

**Tara x** · 03-11-2008 01:52 PM

I was watching what's it called 'diet doctors' on channel five around January last year and they were talking about hair on the stomach and how it can relate to PCOS (I'd never heard of pcos at this time) and I was like OMG I HAVE A HAIRY BELLY !!! but then my mum tried to convince me it's because I'm iranian but she failed, so I went to my GP and got referred to a gyno who specializes in pcos and got diagnosed iiiiiiin march!

**paddy** · 03-11-2008 05:19 PM

Really interesting replies...and a really varied mixture of experiences. Thankfully we all the diagnosis in the end! Thanks for replying.

**Eva37** · 03-11-2008 05:22 PM

tara - that is amazing that you got dx after seeing a tv show

eva

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