Recurrent Miscarriage (HSG mentioned)

[*DannysMom*]

I haven't posted in awhile... haven't really felt much like interacting much. My last (third) mc happened on Sept 2nd... and I have been going through panels of testing for recurrent miscarriage. I have learned a couple of things... mostly that the baby's chromosomes and mine were normal. I had some question marks re: MTHFR... an enzyme I am lacking that ultimately causes a deficiency in folic acid and B-6,B-12 .... it was suggested that i supplement each... and i have been doing so...possible issues with thrombolia... the pathology report located a blot clot on the placenta... and aspirin therapy and Heparin shots have been suggested for future pregnancies... and to our shock... during a follow up exam with my RE he noted a fibroid on my uterus.... which he indicated could *possibly* be a source of our problems... This afternoon I went into the Hospital to radiology for a HSG... the dye showed that my tubes were clear... only to learn that this 'fibroid' is sitting up top in the middle of my uterus... large enough to be causing the uterus to be mis-shapen (i had my first HSG two years ago and my uterus was perfect).... I use the term fibroid loosely... as the dr suggested it could be scar tissue... or it could be a polyup as well... he's leaning towards fibroid. It seems now that I will be returning to the hospital next week for a sono hsg.... as now he needs to get a better perspective of what exactly is going on in there. Our plans for ttcing are now on hold indefinitely. The RE addressed different scenarios... including surgery (if it even gets to that)... and risks... blah blah blah
I have put some time into trying to forget all the heartache... and just had hoped and prayed that today would bring news to celebrate.... like " okay... let's get started again"... instead I think we are moving backwards.... I don't know what God has in store for us... but my faith is waivering... and pray that we can be strong and get past these obstacles that keep popping up in our way. When we got home Dh just sat quietly staring into space... which scares me. He is the strong one. He is my rock. He looked like the wind was taken out of his sail... so disappointed and sad. I know that you all are here as you have suffered this hurt and profound sadness... I know you understand. Thanks for listening.
Karen

[ILLINOISHUSKER]

I'm so sorry you are going through this and I can only imagine how upset this is.

But I want to tell you that it can be taken laproscopically and that is very low invasiveness.

If so and that is the cause, then you may have a reason to celebrate and this is a time for a new beginning.

I hope that all is well and that this can be cleared up for you quickly. I had a massive cyst removed and lost myentire left side at 21. I was lucky to conceive aidan with one ovary, one tube, pcos, and 34 yrs. old.

good luck and i wish you much happiness!!!

[Louie]

Karen, I have been through two and can only imagine what it is like to lose three. I'm so sorry. I'm glad to hear that they discovered a cause (clot) that's usually fairly treatable. Hang in there and know that we are thinking of you.

[Bunnyscott]

Karen, I'm so very sorry. You've already been through more than your share of heartache.

I know right now the last thing you may want to hear is reassurance, but I think Louie's right. The clotting problem is fairly easily treatable. Also, I have MANY fibroids and they still say that I can carry to term with them there. If you do have to have the fibroid removed because it is distorting your uterine cavity, it's a surgery that docs do all the time. The highest risk you would probably run is having one or both of your tubes blocked because of the location of the fibroid. But you can conceive and carry to term after a myomectomy.

It's so unfair to have roadblocks put up in your way after you've struggles so much. I'm praying for you and I hope you get good news soon.

[deblynnc]

Karen,

I'm sorry for what you've been through. I went through it myself, having 3 miscarriages before being diagnosed with a uterine septum. (My HSG 3 years before had shown no problems.) Before the diagnosis, I had convinced myself that I would never have a baby. I was sure that there was something wrong with my eggs that couldn't be fixed. After the diagnosis in November, I had laproscopic surgery in December to remove the septum, and got pregnant again the very next IVF cycle. I'm now 27 weeks.

The surgery wasn't too bad. I went home the same day. The doc made two incisions, one at my bikini line and the other in my bellybutton. If you didn't know I'd had surgery, you wouldn't notice the scars, although my bellybutton has an odd shape now. The pain afterwards wasn't too bad for me. They prescribed Percoset, but I only took 1 the first night. Afterwards, I took Tylenol as needed. I had one complication--my bladder was punctured because it is apparently unusually high in my abdomen. It healed itself, though I had to have a catheter until the urine had no blood in it (less than 24 hours). That complication is a very rare one, I would imagine. I spent the rest of that day and half of the next in bed, then I started moving around more. I was very sore for several days, and it took a couple of weeks before I felt completely recovered, but it was well worth it.

As hard as it is to believe right now, you are not moving backwards in ttc. You have learned something very important that, if treated, may very well help you finally have your baby. I do know how frustrating and heartwrenching it is, but there is hope. Always remember that.

You're in my thoughts and prayers.

Debbie

[Megan]

Dear Karen

you know I have watched you these past months and tried to support you with something as useless as words. But perhaps this time I can be of more assistance.

It is Sunday evening here in Australia and I am recovering from surgery on Friday evening. I had a laparoscopy, HSG and full tubal exploration. The surgeon discovered uterine (rather than cervical) endometriosis and treated it there and then. I have three incisions - one in my navel, one above my pubic hair line and one sort of at the top of my left leg. They are a little tender, but I have not needed any pain medication. Today I was well enough to peg clothes on the line and tidy up a little. Yesterday I was well enough to fly home, as the surgery was done 8 hours from home.

My surgeon is also my RE and he has told me to get back to normal when I am ready and has suggested that I might even get pregnant this cycle, regardless of the surgery. Without that surgery, I would have spent at least another 12 months dealing with the angst of TTC and constant failure. For the tiniest bit of pain, I now have some answers about why we haven't been able to conceive since losing our first baby 12 months ago. I think that for the answers you will get, you should seriously consider going back for the surgery. I know I haven't felt this calm in 12 months. All of a sudden I have some explanations and reasons. I think that you are searching for the same. Perhaps this further surgery will find it. Every time you long for another baby, you are taking another step forward, even if you don't feel that way right now.

Surgery is scary and not to be taken lightly, but it has also brought me the answers that no amount of research or experimentation was ever going to offer me. And, even more important, we have successfully removed the barrier that was preventing us conceiving another precious child.

Take a deep breath and give it some serious thought. And if you have any questions, just PM me and I will answer you where I can.

Bright blessings

Megan the OzFarmer

[*DannysMom*]

Thank you all for taking the time to reply to my post.

I have been trying to just get through the week - awaiting my next appt this wednesday for the sono hsg... except, I have insomnia now... and it's like it is my body's way of saying
" Karen... your situation is still the same... and you can't deny anything bc I am going to keep you awake until you think about me and think about the options you may have to face". I am exhausted and irrational. Dh was happy to spend the entire weekend working as I was driving him insane.

We do know that whatever it is the dr said it is likely that it will have to be removed... I am without a doubt willing to take whatever risks necessary to have a baby... I am not ready to give up. And I guess what I have been feeling lately is that in the *beginning* we had SO many options... and now our ttc plans have been abruptly altered... before it was a matter of *when* our Gonal F would work... now it's you may not achieve a pregnancy or wish to attempt one with a distorted uterus... a far cry from two years ago when we walked into our RE's office and he was nothing but optimistic for us.

It is encouraging to me to hear your success stories... it really is. I will let you know the outcome of next Wednesday's sono hsg...

Karen

[*DannysMom*]

You know... I have spent many times praying for miracles... only to be devastated and disappointed by the outcomes.
I am floored today.
I just got home from my sono HSG and the RE and the Ultrasound technician found NOTHING in my uterus. It left us all scratching our heads as a week ago today there was something causing an obstruction in my uterus. Today's hsg showed no abnormalities... no polyp no fibroid no scar tissue. NOTHING.

I return for what is supposed to be the LAST procedure
"a biopsy" completed in re: to recurrent miscarriage... and that is going to be next week.... they'll check for infection in my lining or any other kind of abnormality in the lining. From there... it's highly probable that we may start tccing in the next month. We fully had expected that a surgery would need to be performed to remove the abnormality... causing weeks of recovery time and a delay in moving forward. We NEVER expected this... good news.

Thanks again to all of you who posted... I just thought you might be interested in this amazing day we just had

Karen

[deblynnc]

Congratulations. I don't know if it was a mistake in the first test or a miracle, but it is wonderful news

I'll be praying that the next time is the one for you. Please stay in touch and let us know how things go.

Debbie

[Bunnyscott]

Hooray Karen!!! I'm thrilled for you!!

[skiboo]

Yippeeee Karen!!! I am so happy that your tests turned out so well today. I logged on especially to see the results. I was planning on sending you another email telling you all about myomectomies and what to expect and to give you support and encouragement if need be... and instead there is such wonderful news that my dh is wondering why I am in the den going "Woo Hoo!!!!".
I hope that next weeks bioposy goes equally well as todays tests and that you are back in the ttc game next month!!!
Take care and keep in touch!
Warmly,
Janie

[*DannysMom*]

Thanks ladies

Your support means the world to me.
Karen