sick of being here

ihatepcos · 07-06-2006, 07:36 AM

im sick of pcos. im sick of feeling like theres nothing to help me. i'm dieting, but i don't really notice a difference in anything. my mom isn't helping me get to my doctor, and she doesnt talk to me about it. i dont understand it, and i'm just trying to educate myself online with this. i dont know what to do, i feel trapped. i have serious scars, cystic acne, facial hair, my periods are fairly normal, every 35 days.. and i have ovulated, cuz i miscarried once.. but god only knows now, i have insulin resistance.. and all my dr wants to do is turn off my ovaries, per say. i dont want bcp, i want something to treat the root of this. im losing weight cuz i understand that it helps for some, but what if im not one of those women? my mom never really struggled with it, just cystic acne, and the stuff i have, which is considered a "mild case" but to me it feels like the worst.. and i know theres many women out there who have it worse off, and i'm sorry but im just so frustrated right now so dont think im selfish. can anyone just please give me some insight on what to do. just anything, please.. anything that helps you or someone you know.. thank you

Arctic · 07-06-2006, 09:08 AM

I am with you. Im sick of it all too. I obsess about my facial hair 24 hours a day. Being a scientist I keep wondering why this has to happen and why we keep having to find things to fix it and why there's no "cure". As a women I find it sooooo hard to live with these symptoms. I have no answer to your question, I guess I just read your post and it prompted me to share my depressive feelings as well........

Your username is so right.........I hate PCOS too

Karr23 · 07-06-2006, 10:19 AM

Hey there,

I hear ya.. I hate PCOS as well.. Seems like no one around me understands what the heck is going on inside my body.. Doc says " Don't worry about this or that" ya well you try and live with it...

Its getting a little ridiculous to deal with.. changing meds every 3-6 months or not getting AF for 6 months and then she comes for 6 months and no one wants to do anything about it... Argggh.. I am with you.. I hate this...

ihatepcos · 07-06-2006, 01:34 PM

It's such a horrible syndrome. I find a lot of doctors aren't educated on it, and the ones that are, aren't very interested in how you feel about certain things.

I wish there was more of an awareness of it.

purplerose · 07-06-2006, 07:01 PM

Quote:

Originally Posted by ihatepcos

It's such a horrible syndrome. I find a lot of doctors aren't educated on it, and the ones that are, aren't very interested in how you feel about certain things.

I wish there was more of an awareness of it.

I completely agree. My first doctor knew almost nothing about it, just enough to tell me that I probably had it. I'm starting to think my current gyno doesn't know much more. I've gotten answers from her that were just flat out wrong ("Lipitor won't interact with anything you're taking"...except it's been shown to interact with bcp's), and she wouldn't put me on met despite my high lipid levels because I told her I wasn't ttc and apparently she thinks you only need met if you're ttc (which is not true!). Never did she stop to think that any of my problems could be connected to PCOS. I'm seeing a general practitioner now who knows more about it than my gyno does, and I want to see an endo. I don't know if one would even take me seriously since I'm not ttc. A lot of doctors seem to think it's just a fertility problem (which is also not true, as we all know). I'm no doctor, but with a degree in biology plus the reading I've done on my own, I know a lot more about PCOS than some doctors do.

PMHess · 07-06-2006, 10:29 PM

I tend not to have any visible symtoms. I shave my facial hair (and other places I shouldn't have it). I don't have a weight problem because of my gastroparesis... but I just feel like crap all the time. And the doctors just don't care. The last endo I saw (who apparently is an expert on PCOS and has written books and holds conferences with doctors all over the world about it...) she told me, well... I'm sorry I can't help you if you don't tolerate BCP's and can't be on Met because of your insulin pump... but if you ever want to get pregnant... come and see me!
I was appalled! How dare she not take me seriously just because I don't want babies! I don't think it's fair that I FEEL like I'm pregnant all the time when I'm not. It's miserable. PCOS sucks! I hate it! I can't WAIT for Menopause! Please!!! Please! Someone pause my menes already!!! I'm ready! Though sadly... I'm only 35... my mom is 75 and she's STILL having hotflashes.
Sigh. Being a woman sucks sometimes.

Arctic · 07-07-2006, 08:24 AM

Amanda - I totally agree with you. I have a Biology degree too and I specialised in Reproductive Endocrinology.

It's taken me 4 doctors to even get one to discuss what I'm eating!!! Can you believe that? Definately one of the more important things I would have thought! One doctor even told me that I wasn't too overweight when I asked about my diet. I could have screamed at her that I used to be in the obese range and I've lost weight and that doesn't mean I AM NOT IR!!!!! I think the frustration factor is probably the hardest to deal with. The waiting, not having doctors who know anything or frankly don't care. I think that's why most of us are here. Because we all care about this syndrome and what it does and we therefore care for others with the condition.

And I totally agree with the babies thing. I saw a gyno for a polyp on my uterus and all she really had to say was "you'll have to go on clomid when you want to get pregnant - come back and see me then". Well for starters there's a lot more to it than wanting to get pregnant, and second, there's a few things I'd like to try before clomid. Reading a lot of the forums it's obvious not all women with PCOS need clomid.

Anyway - doesn't it feel great to have a rant!

DollFin511 · 07-20-2006, 08:53 PM

I am sorry your mom isn't more supportive - maybe you should talk to her about it. Help her realize how important it is to you for her to help you. If you can't do that, just do the best you can for now. One thing that really helped me is a book called "The Natural Diet Solution for PCOS and Infertility." You can find it at http://www.ovarian-cysts-pcos.com/ It is written by a doctor and is very informative - I really think it would help you. I hope you can get the support you need from your mom - you deserve that.

Headyfeady3 · 07-21-2006, 12:52 AM

I wish that someone could get a DR to get on here and read some of the posts that we write maybe they would start to listen and get the word out. Took me 10 years to get a DX and I still feel like NO ONE listens to me. I am on met and was told that if I dont get PG in 3 months then she will start me on clomid. GRRRRRRRRRRR