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Old 02-09-2005, 10:15 AM   #1 (permalink)
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Default So Angry

I am sorry to rant here but I am just so angry at the moment.

I had a gynae appoiment this morning, my 3rd in all and it was too give them an update on how i have been since coming off Dianette in November, how my symptoms have been and an updat on trying for a baby.

Firsty i tell him that i have had 3 periods since coming of Dianette (yay me) but that recently i have been told by my GP not to TTC until i come off the anxiety medication I am taking (I am currently decreasing the dosage).

I then say I would like to go onto Met, not only for fertility reasons but to see how it effects my other PCOS symptoms (weight, excess hair and acne). He says NO! and tells me that i cant go on it as its only used for woman with PCOS who have been trying to concieve for sometime and that it is not used for another other reason.

I tell him and show him the information i have on Metformin from SC, he didn't even look at it! He then goes and checks what he is saying with the gynae, he comes back and says she is in agreement that i cannot have Met.

He then procedes to tell me that LOSING WEIGHT will help with all my symptoms and i tell him how i have been trying, i then say about how the weight, spots and excess hair is getting me doen and that I would really like to try Met. He then says i could always go back on DIANETTE!!!!!!!!!!

I tell him that I am not going back on Dianette because as some as i am fully of the anxiety medication (hopefully in a few months) i want to try for a baby !!!!!!!

At this point i get really upset and start to cry, he looks at me blankly and asks if i want to see the gynae and i said yes.
So I am sent back to the waiting room to wait and see the gynae (who my appoinment was originally with!)

Eventually i get called into to see her and she says she wont give me Met for the same reasons as above and that all she can do is to refer me to a endocrinologist (which is who i wanted to see in the first place but my GP said it was best to see a gynae).
AND THEN I GET A LECTURE ON HOW LOSING WEIGHT WILL SORT THE SYMPTOMS OUT (COS I LOVE BEING OVERWEIGHT).

And thats it, she hardly looked at me, so here i am having to wait another 2 - 3 months to see an endocrinologist.

Thanks to anyone who has managed to read all of this

Lucy
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Old 02-09-2005, 11:51 AM   #2 (permalink)
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Lucy~I am so sorry he treated you like that! What a rude rude man! It's your body and you know what it needs for goodness sake! A doctor should never speak to you in such a condescending tone, although it happens far too often. Well, I hope the endo will treat you with the respect you deserve and will finally prescribe you Met. (((hugs)))

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Old 02-09-2005, 06:20 PM   #3 (permalink)
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I agree with amber. That's a very unprofessional way to treat a patient. I thought we are supposed to be apart of our health care, not just do as we are told and accept it. Thats what I am taught now that the patient has rights to be involved in their own care. The fact that he would not even look at your information shows how unprofessional he is.

Next time you go I think we should have a chat honey. I may have a few ideas, not promising anything. But I'll definately see what I can do.

I had my blood results through today and I got questioned by the receptionist on why I wanted a copy. I then had to pay 50p for it. lol. I can't believe it. The health care here is all messed up honey. Don't give up, I'm here for you, we all are.

Chat to you soon. Get in touch with me soon.

Take care

Bex

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Old 02-09-2005, 08:10 PM   #4 (permalink)
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Lucy, I am so sorry you have had to go through all that. Sadly, it is practically word for word what a lot us here in the U.K. have been told by our doctors. Like you said, obviously we all love being overweight and it must just be our lack of willpower that makes us like this --that's my G.P.'s opinion, anyway.

Stay strong, I know it's tough but we are all rooting for you. When you finally get your endo appointment, try taking your soulcysters info and a list of questions you want to ask. Hopefully, this doctor will be more receptive. Good luck.
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Old 02-10-2005, 08:41 AM   #5 (permalink)
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Lucy- that's awful. I'm so sorry you had to endure such a rotten appointment. It does seem to be the way it is here in the UK, they are very reluctant to give Met.
(((((Hugs))))) I hope the endo is more positive.
Deeds x
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Old 02-10-2005, 03:24 PM   #6 (permalink)
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sorry to here about the way you have been treated

the doctors here are crap - it is sooo difficult to find someone who will really listen. They just want you in and out as quickly as possible.

I want to go to my docs about my symptons I have read loads on here about Metformin and think that I could really benifit from this but i part of me thinks that the doctor will not help. I am so worried about it all.

I have suffered from depression for years and it has been so difficult getting help for that so I know it is gonna be difficult getting help for PCOS
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Old 02-10-2005, 07:31 PM   #7 (permalink)
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Default So sorry....

Hello cat180,
Just wanted to send you ((((Hugs)))) about your gynie appt. It went exactly the way mine did with my gynie in May right down to crying because all they would offer was the Pill and losing weight!!!! (as if I hadn't been trying, I wasn't TTC though) Again the registrar I saw couldn't cope with the tears and had to see their consultant and they offered me to see an Endo. Just wanted to tell you that the Endo I saw was much better, very positive and well informed about PCOS. I haven't been prescribed Met yet but waiting for my test results for IR coming back in the next week or so. He did prescribe a weight loss drug (Xenical) which I'm trying in the mean time. It did take a couple of months for the Endo appt which was frustating but I would suggest speaking to the Endo's secretary if possible to get put on a cancellation list so you can get someone elses cancelled appt if one becomes available. It's just really frustating that people with PCOS don't get referred to Endos straight away, it would save so much time.... I've had PCOS since my early teens but given up seeking treatment several times because of the months between appointments only for the symptoms to get worse...... Anyhow I hope you get more joy with the Endo like I did.
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Old 02-12-2005, 01:09 PM   #8 (permalink)
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Hi Lucy

I was really sorry to hear about your appointment. I had a really bad one with a female doctor and I ended up complaining about her and asking my doctor if I could see someone else. I also printed off loads of information from this site for my doctor to read when I asked him if I could go on Metforming. He told me that GPs are not allowed to prescribe it to treat PCOS without permission from a specialist.

The second specialist I saw was fantastic and put me on it in June last year. My period are now every 28 days and I have lost about a stone and a half. I am still on Prozac and have been told that I may have to stay on it for the rest of my life. However, I am hoping that if I ever manage to get down to my ideal weight that my symptoms will improve and that I will be able to come off the Prozac. I have found that being on Metform makes it alot easier to lose weight.

My advice to you is fight, fight, fight!! Make them listed and demand to be put on it. I think my doctor realised I was serious when I told him that I would just buy Metformin from America. He was horrified that I might try and self medicate.
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Old 02-13-2005, 09:34 AM   #9 (permalink)
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I'm so sorry. I think it is the norm in this country though, unfortunately.

I only got met after years of asking. The gynae who does all the infertility stuff at my local hospital finally gave it to me when he stuck me on a 9 month wait list for ovarian drilling. I think it was because he thought I wouldn't leave his office without something. Oddly, it is used in a lot of places in the UK. It's just not liscenced for use in PCOS yet, so a lot of docs won't. I know for a fact that the endos at Bart's (one of the top endocrinology units in Europe!) were using it for PCOS back in 2000. Unfortunately, I wasn't seeing them.

My favourite thing about the whole met thing for me is that my GP is the one prescribing it for me on a regular basis, but he himself tells me he knows nothing about it for PCOS. When I wanted to up the dose to 1500 mg/day it took months, because I had to go through him to the consultant to get the OK. Then the GP prescribed the increased dose. How does it make sense for a doc to prescribe a drug he admits to knowing nothing about (for this condition)?

Good luck! I hope you find a doc to treat you well.

Bob
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Old 02-15-2005, 07:26 PM   #10 (permalink)
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I'm sorry about your app. I hope you have more luck with an endo soon. Keep us posted. Caroline
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Old 02-15-2005, 08:31 PM   #11 (permalink)
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wow, sorry your experience was such crap!!!

at least you got an endo appointment out of it all.

i hope that goes much better for you!

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Old 02-19-2005, 07:25 AM   #12 (permalink)
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Lucy

I'm really sorry to hear about your bad experience. That’s just awful no one should ever be treated like that. Was it Russell Hall by any chance?

There is a fantastic guy at Droitwich hospital who prescribed me with Met without asking for it he also gave me lots of photocopies of magazine articles from medical magazines telling me all about the benefits of taking Met. I then visited my GP for a repeat prescription who refused point blank to give it to me. So I promptly change GP who instantly prescribed it and I’ve have had no problem since. I guess I've been one of the lucky few. If you want to PM me and I'll give you all the details of my specialists.
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Old 02-20-2005, 11:05 AM   #13 (permalink)
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Im sorry to hear about your experience but I hate to say it unfortunately its everywhere. I was referred a few years ago to the Womens hospital in Liverpool and the consultant was the most arrogant and condescending man I have ever met. He refused to treat me in the end because I wouldnt lose any weight. ( I did it on purpose like cos I love being a chubber) even though I said I could lose all the weight in the world it wouldnt help me cos I have zero self confidence because of my facial hair it didnt make any difference and then they had to take me off the dianette because I have been on it for too long. I got met as a pure fluke. I had asked 2 of the 3 doctors in the surgery and they both refused and then I saw one that I hardly ever see and just casually dropped into the conversation that my dietician was going to write to him to ask that I was put on medication and he said what? metformin? Ill do you a prescription now. You had to pick my jaw up off the floor honestly. I dont know if the dietician did write she say she may I just saw an opportunity and got lucky but it certainly isnt the way to do things, There is not enough known about it. Try not to get too disheartened and look for that opportunity. Hope it works out for you.
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Old 02-21-2005, 10:57 AM   #14 (permalink)
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Hi Everyone

Thank you all so much for your kind words and support, i really appreciate it.

I am trying to stay positive and am just waiting for my Endo appointment to come through - fingers crossed for a good outcome.

Once again, thank you, its wonderful to know that my "cysters" are here for me

Lucy
xxxxx
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Old 02-28-2005, 12:35 PM   #15 (permalink)
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ok so its not just me then.
for the love of g*d do these doctors think we make this illness up? i actually think they do, its like yeah i've been working on growing some cysts on my ovaries before my scan so i have an excuse for bein overweight. i'm actually tryin to get some blood test results from my doctor just now but its not workin out (i have a rant posted in the rant section about this) i could scream!!!
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