SO Confused about hysterectomy - Page 2

Mishee · 07-03-2009, 03:30 AM

Quote:

Originally Posted by thegumbiecat

this guy sounds like a goober.

Oh my god. Absolutely, this person sounds like they don't know what they're talking about. I'm so glad you're getting another opinion. Ovarian cysts do not by themselves indicate ovarian cancer. The only link between ovarian cysts and ovarian cancer is that there is some evidence (not a ton) to suggest that having a history of large cysts on one's ovaries (usually ones that have to be removed surgically, not ones typical of PCOS) may slightly increase the probability that that person will develop ovarian cancer at some point. The increase in risk of ovarian cancer from this is smaller than the increase in probability of ovarian cancer in someone with a family history of ovarian cancer. I can't believe your doctor knew that you had PCOS and thought that you might develop ovarian cancer because he saw cysts on your ovaries. I hope you find a better doctor. Good luck with everything.

CathyJ · 07-07-2009, 03:50 PM

Well, I went to the other doctor who is suppose to be very knowledgeable dealing with PCOS. Thank God for a cancellation! Anyway, I was just very honest with him, and told him what the first ob/gyn recommended, and then what the endocrinologist said. I told him that I was very scared, and was not sure which way to go.

Let me tell you, I wish that I had found this doctor YEARS ago. He was the nicest doctor I think I have ever been to and very thourough (sp?). He decided that his best course of action was to do an ultrasound himself and see what he was dealing with. So, he does the u/s and said that he also thinks I need to have a hysterectomy. He asked me exactly what the other ob/gyn said, and I told him he just said that I had a multi-cystic mass caused by PCOS, and I needed a hysterectomy. He said actually, its not cysts, its multiple growths. He said this is NOT what we usually find in a pcos patient. This is something different, which he named, but I can't remember what he said. He also noticed something funny with my uterus. He said that he fully understands my endo's concerns and that he was more than willing to discuss things with him before the surgery so that he was aware of what was found. He said that the hysterectomy will not make the PCOS symptoms go away (which I already knew, but I am glad he didn't sound like an goober) but that I may find that my quality of life is better and some things may get better, worse, or stay the same. He said it is really different in each patient, but sometimes things like this type of growth become top priorty. He said if I wanted him to do the surgery, he would be more than willing to do it. He also said that he will work closely with me and my endo afterwards to make sure that everyone is on the same page regarding my care.

Anyway, I just really feel like this guy is the best ob/gyn I have EVER been to. I, believe it or not am not freaking out about the surgery, and I even have the date scheduled for it which is July 28th. I know that the closer it gets I will probably start to get a little worried, but I at least feel comfortable with the answers I was given, and the reasons for the hysterectomy made sense.

serenna · 07-11-2009, 09:27 PM

I know the feeling!! And I hope that everything went ok with the surgery if you had it done. I recently went through the same procedure. in dec 2008 I went for that, along for a laparascopy, D & C and while they were in there - they found that my ovaries were actually adhered to my uterus. It was very painful after words, especially doing the whole combination op's. but i think that it was for the best. i had not had my period for over a year. So I guess that some of it was needed. i was a little scared, but I'm still taking steps to TTC. i wish you the best!!

coppermom · 07-16-2009, 05:19 AM

Glad you got that 2nd opinion. I had a TAh and oopherectomy on 3/11/09. Feel great, no more crippling pain. My OB said it was "like chipping away at cement". I had adhesions from my bladder to my intestines. She even apologized for making me wait so long to have the hysterectomy(i had been asking for 2 years). I'm on a very low dose estrogen patch and off my Metformin(yea). I still have IR, balding hair, and depression, but I really do feel so much better. Good luck with the surgery. Rest as much as you can afterwards, and don't be surprised how exhausted even the littlest things make you feel. Also, there is a great support site called Hystercysters.com. It tells you what you can expect week by week. Loved it, and it answered so many questions that came up post op.
Take Care,

CathyJ · 07-16-2009, 10:17 AM

Coppermom-Thanks for your reply. I am hoping that I feel better after the surgery. I tell you the pain I feel sometimes is unbearable, and I am exhausted all the time. I just found the hystersisters website yesterday and signed up. I couldn't believe how much information was on there. Quite honestly, I am just really scared right now, and need to get this over with. I think once it is all said and done I will calm down.