Sore Joints, High WBC, Vomiting, Nightsweats...PCOS Related??
About a year ago I traveled through the High Desert in CA and then to Sedona and Phoenix, AZ. One morning while in Phoenix I woke up with a weird rash on my chin, it was several symmetrical dots lined up in a square pattern as if I had fallen asleep on some kind of patterned fabric but the rash was raised and stuck around for a few days. It may be worth mentioning that I did notice swollen lymph in my armpits shortly before I left but my doctor said it was nothing to worry about. Those same lymph nodes are still swollen today.
I then started vomiting very frequently and getting really bad night sweats. After many different tests (CT, Gastro dumping, etc...) I was told that I would just have to live with the vomiting and was put on Marinol to try and control it a little bit. I still vomit about every other day and have night sweats every night (Even though I turn down the heater to 60 at night).
About 5 weeks ago I came down with severe flu like symptoms. No treatment was given, was told to try and take in fluids. About the same time I was getting over the flu I came down with an upper respiratory infection. After a CBC my WBC came out to 14.1 and I was immediately put on 1000mg per day of both Ciprofloxacin and Flagyl for 7 days.
Once those were finished I was still having a hard time breathing and wheezing quite loudly so I went back and was put on a Z-pack and prednisone after a WBC came back of 12.3.
3 days ago I woke up (after a short 20 minute nap) with severe pain in my elbows, knees, back, hips, and even my finger joints. I finished the Z-pack and prednisone a couple of days ago so I visited my doctor again today. This time my WBC came back as 16.2.
Throughout the last 5 weeks I have lost about 30 pounds (I am very large but this is still a big percentage of weight to lose in 5 weeks). I had my gallbladder out at 18 and have a history of PCOS and Endometrial Hyperplasia. I also have asthma and hay fever. Over the last 3 years I have had to have several staph infections surgically lanced on my breasts and about 3 months ago I tested positive for MRSA in one of those abscesses.
At this point I guess my main complaints are the night sweats, frequent vomiting, and extreme joint pain (although I can't feel it, the high WBC does worry me as well).
I am only 24 years old and sometimes I feel like I'm 80. I'm not really sure where to go with this from here, if you could just point me in a direction to research I would really appreciate it! Could any of this be PCOS related?
Last edited by TMLyons710; 10-17-2009 at 04:35 PM.
Ummm, I'd be getting a new Dr... I can't imagine being told to deal with vomiting every night...
I wonder what your progesterone levels are? As when they start spiking at the beg. of a PG, they CAUSE morning sickness (that we know can last all day.) Could you be spiking? That's a total shot in the dark...
I hope you figure this out... but I would really consider another Dr... and I would start researching auto immune disorders to see if you fit the symptoms...
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I guess I should add that all of this testing has been done in Minnesota's Mayo Clinic. All of this stuff has not been through one doctor but teams of gastrologists, OBGYNs, infectious disease, and my general practitioner.
I am currently researching autoimmune disorders but can't seem to narrow it down to a couple possible answers so far. Also, I do have blood tests out now that are looking for legionnaire's disease. I should get the results of this on Monday but I am almost positive it will be negative...leaving me no further along in this than I was a year ago.
The progesterone idea is a good one, I have written it down and will be talking to my doctor about it on Monday. Thanks cdcm!
Hi Merry,
Thanks for the reply. The doctor had mentioned something about lymes disease but quickly ruled it out after asking me if I had been in any areas where I could have picked that up. As far as I can remember, I haven't been anywhere that I could have picked up a tic in the last 18 months or so.
You say you have chronic lymes, is all lymes untreatable or just the kind you have? Also, are there any ways to pick it up without getting a tic bite? I do have 2 dogs and 2 cats but neither have ever had any kind of issues with fleas or tics as we use massive amounts of frontline within the home and I live in a super cold area (Minnesota).
I am waiting as patiently as I can for the Doctor to call me today as I do get the results of the Legionaires test back today. If they come back negative I am going to ask for him to go ahead and test for Lymes just to be on the safe side. I grew up in Kansas, and because of that, I know all too well how easily those tics can hide from a person. I am also going to ask him to test for LOCAH and do a general A&A Panel. Anything else anyone thinks I should I add to this list?
I was never an out dorsey type person, but I got Lyme from handling animals. If you have animals that go out side you can get a tick bite that way. Only 50% of people ever get a rash or remember a tick on them. I did not have a rash or a tick on my body.
but I got Lyme.
You want to treat Lyme asap and agressively. that way it will have a harder time becoming a chronic infection. I have been on antibiotics for 2.5 years,
It is a controversial disease, so dont believe everything you hear. If you have Lyme disease, You should treat it until you are symptom free for 2 months. a good antibiotic is doxycycline 300mg 2x a day.
Dont accept less.
also ticks carry other diseases such as STARI, babesia, bartonella, ehrlichia, to name a few
Please let us know how things go.
Just thought I'd update you guys. The blood tests came back negative and so tomorrow I've got to go get more blood drawn. They are now testing for Mono, Lymes, and LOCAH.
Well, we have gotten no where. Mono was negative, Lyme's was negative, and the LOCAH test was normal. They have now put me on pain meds to help deal with the joint pain and I am just waiting. My doctor wants to send me to the the U of M infectious disease department. He is currently speaking with their doctors regarding my chart and I should know soon when I have to be there. Seriously...I am just ready for this to be over. Anyone have any ideas for me at this point?
Go to a rheumatologist! It could be fibromyalgia or lupus or something. I have some of those symptoms and my dr just told me it was fibromyalgia b/c my obgyn said it wasn't pcos or endo related. It's worth a look into!
Go to a rheumatologist! It could be like lupus or fibromyalgia. I had some of the same symptoms and my obgyn was baffled so she sent me to one and he said i have fibromyalgia. it's definetly worth a try! goodluck!
Sore Joints, High WBC, Vomiting, Nightsweats...PCOS Related?? 
