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Old 07-21-2006, 12:34 AM   #1 (permalink)
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Default Stumpted and Scared/PCOS questions

Can high estrogen be related to PCOS eventhough there is no AF? Just did a blood work and it shows that its high but no AF. The progesterone serum,FSH serum,and LH serum are normal. I have not had a AF in 7 months. This blood test was done on Tues and had to have another today because RE was concerned. I also had a vaginal ultrasound and my lining was very very thin and ovary follicles between the both were about 6 or 7 and left ovary enlarged also. I had ultrasound done about 2 weeks ago and the lining was very thin at that time and left ovary enlarged with liittle round things attahed to each other too. Very confused about this. Is it possible to be PCOS? She wants to do a saline ultrasound but I need to get a period first. She was going to give me Provera to induce AF but she wants to hold until tomorrow when she gets the results of blood work. If blood work shows the same she want to do something else. Also she will be scheduling another vaginal ultrasound to find follicle count,ovarian volume and endometerial stripe. It worries me of what she is going next because I don't know yet what she will do. What do you think she will do? She know of some possibilities of what it could be but does not want to give me a definet answers until all test comes back to leading it then she will talk to me more about it. I am only 30 years old and very concern about this I really don't know if this is really PCOS. Please help if someone knows more about this.
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Old 07-21-2006, 12:40 AM   #2 (permalink)
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Sounds like PCOS. Alot of the time different hormones are messed up. I have had the same problem with the lining being thin. My GYNO thought that if I did get af with met it would only last a day or 2 cause of the fact that the lining was so thin. AF came and lasted 14 days. Boy was she wrong. I dont want to scare you but she could be thinking that it is a tumor that is causing the problem. I would wait and see what she thinks. Hope it works out well. Keep us posted.
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Old 07-21-2006, 05:20 AM   #3 (permalink)
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From what my doctor explained to me, when you have a lot of estrogen and your body doesn't or can't possibility use it all, it gets converted into testosterone. The round things attached to each other is probably the classic "ring of pearls" that I've heard about associated with PCOS. It sounds to me like you have PCOS. But don't worry, there are a lot of women here with PCOS that conceive, many naturally. You've found the right place for support. Be sure to let us know how everything turns out! Good luck!
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Old 07-22-2006, 05:55 AM   #4 (permalink)
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Your estrogen is high BECAUSE there is no AF. First of all, the ovaries produce more estrogen & testosterone b/c they are stimulated by excess insulin (usual PCOSer). The ovaries don't receive the correct stimulation to produce one good egg which "pops" out and produces progesterone and tapers the estrogen. Instead they get insulin--yucky. Sometimes estrogen converts more to testosterone and can also happen the other way, which leads to imbalances.

Next, if you have no ovulation (no AF) there is absolutely no progesterone to balance the estrogen--progesterone is what makes the brain "turn off" production of hormones (FSH, LH) that lead the ovaries to crank out even more estrogen. ProgesTIN in the bcp helps balance estrogen & makes the brain turn off for most women, but progestin also worsens IR and has its own side effects. Not quite the same as the real deal!

IMO 90% of my problems are from too much estrogen, not testosterone. In addition, I had too much coming from adrenal glands as well (high DHEA but not high enough for Cushings). Excess and/or unbalanced estrogen can cause hairloss, acne, mood swings, fat, worse allergy symptoms, bloating, and more.
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Old 07-22-2006, 03:39 PM   #5 (permalink)
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HI, it's me just to let you know I don't not have the results yet the hospital lab messed up it was supposed to be a stat order and the hospital forgot to fax over the results right away so I called the hospital lab yesterday and they were going to fax it over as I was speaking to them. They got me so mad next time I will do it in the RE office eventhough I have to drive an hour and half to her office. The doctor's office called to let me know as soon as they get the results they will call me so hopefully today or Monday the will call me with the next step. Also I couldn't get the ultrasound because the hospitals and outpatient radiology centers near me did not have the equipment to do special ultrasound with follicle count,ovarian volume and endo stripe so I have to wait until I go to her office. I know I have a good doctor now because she or office staff keeps in contact with me everyday since I saw her on Tuesday and they are very concern with me. As soon as I hear anything I will let you know. Thanks for the responses.
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Old 07-22-2006, 07:02 PM   #6 (permalink)
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Does any one knows about saline sonogram? Does it hurt? I am scheduled for one once I get a period if I get one. I don't know what it intails but wondering if it will be uncomfortable or a piece of cake. When it come for that kind of testing I am a wimp.I just don't like anything probing down there. Once I had a test that they put a catheter in cervix to see if I had a cervical blockage and I was a total wimp and starting crying and shaking and the procedure was stopped. (It was a mock IUI catheter) Also I did not know I was supposed to take Motrin before hand. They told when I was there ready for the procedure. I can deal with vaginal ultrasound but when it comes to catheter I don't know. What can help to ease the outcome of sucessfull saline sonogram? What are some of your experiences of saline sonogram? What help you stay relaxed?
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Old 07-24-2006, 09:40 PM   #7 (permalink)
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The doctor called me at work and blood test came back that my estrogen is high again. It was higher from on Tues July 18. She will be testing me twice this week to see if it go higher and on Fri she will let me know when to see her next week to talk about the next step. All of my other hormones are normal. Just confusing. Should it be high during AF time? I still don't have AF yet. This is just freaking me out! I am just stumpted about this! Gotta go because I have a bone densitity(sp?) test to go to due to not having AF for so long.
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Old 07-25-2006, 01:42 AM   #8 (permalink)
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I just wanted to say, I had a saline ultrasound (not sure if it's the same as a sonogram, but I think so). It was painless. It does not reveal tube blockage, but checks the uterus for polyps or growths.

For me, the HSG was a different animal alltogether. I couldn't take it and the doc had to stop, but you can have it done with local anesthesia too (like a cavity drilled).
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Old 07-30-2006, 04:39 PM   #9 (permalink)
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I went for another estradiol test and other hormone test and will find out on Mon for the results. The last estradiol was 285 and the other hormone levels were normal. It went up from the last blood test. Still no AF! But have the symptoms like cramping from my left side going towards the middle,back pains,bloating,food cravings,and that wet feeling like something will flow through but nothing(sorry so graphic I think). Sometimes I will spot dark brown and it will not last long. It will happen on and off for two days and I will only notice it when I wipe but will not stain pantyliner. The last time I spotted it was on July 17 and spotted in the am when I wiped and that's it. Sometimes this will happen and sometimes nothing will happern. I am getting really tired of getting blood work two to three times a week. When the nurse calls me on Mon she will have an ear full to tell the RE. Maybe I'am just frustrated! I just feel uncomfortable when I have the symptoms and nothing will happen. On Fri she told me that maybe it has to do with PCOS but want to be sure if there no other issues first to be safe. How is she going to schedule a saline sonogram when I don't have AF yet? Can she do this eventhough I do not have it and I know that I am not pregnant or TTC? Do you think I might have to wait forever for this because I do not see AF coming in near by? Will it casue harm if I schedule this without having AF eventhough not TTC? Why having symptoms for AF but no AF? Sorry I just feel frustrated and uncomfortable and just want AF to relieve this feeling.
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Old 08-05-2006, 03:56 PM   #10 (permalink)
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I am here but was alittle busy that I was not able to post on Thurs. I had to go for my mammo gram right after work. I got my results of my blood test and my estradiol level went down to normal level. She said that I ovulated and I am near to get my AF-HUM MAYBE! Can blood test be right that I will get AF? Because to me I don't think so,it's almost 8 months now and still don't have it. She will continue to see if I would ovulate regularly thru blood test. If I don't get AF by Aug 10 then I have to call her for the next step. As soon as I get AF as she plan that I would this week, I have to call her so she can do day 3 blood work and schedule saline sonogram to see if there is any uterine defect to be the cause. Now I really don't know if I have PCOS. Can you still ovulate and not have AF but still have PCOS? I don't know if I ovulate on regular basis but will find out thru blood work. Why is that my estradiol is normal all of the sudden? Can you still have normal estradiol and have PCOS? Is there a chance of PCOS or can it be a uterine defect instead? How long can you go without AF before it does any damage? Is there a chance that I will get AF this week? I am not on anything or have tried to induce at this time. She just thinks that it will happen on its own. So lets just hope she's right!
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Old 08-11-2006, 04:09 PM   #11 (permalink)
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Still no AF but spotted black when wipe with abnormal smell. I called my RE and had to go for blood test this morning and she schedule for saline sonogram because she can not wait any more until I get AF. She said that the black spotting and abnormal smell was not normal and thinks that maybe infection going on and something with uterine. She put me on 2 antibotics-one Doryx and the other one is Flagyl for 14 days. I go for my saline sonogram on Aug 17 also she will be doing uterine biopsy also. She will also check the ovaries to see if I definite have PCOS and uterine for other problems. She said on the phone yesterday that I may have PCOS and some other uterine problem also and will confirm it on my appointment day. Let you know more after the appointment.
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Old 08-11-2006, 08:17 PM   #12 (permalink)
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I just wanted to wish you luck with your appointment!!! I hope you start getting the answers to some of your questions.
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Old 08-17-2006, 11:03 PM   #13 (permalink)
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I went for my saline ultrasound this morning. Couldn't post early because I was tired and not feeling well so I took a nap. The antibotic are messing up my stomach so I'm been throwing up today. It was a two hour drive to my RE. My RE was on vacation so I got to see the covering RE which she was nice. All went good with the saline ultrasound. She said that there is no uterine defect-that's good! I still have a thin lining. I just have to wait to see my RE in two weeks to find out why I am not getting AF. She might put me on birth control pill according to my nurse coordinator or do other testing. All of my other test came back normal including my hormone.The only test came back positive was my bone density test which shows that I have bone lost due to not having AF. I am on 1,500 mg of calcium to help my bone lost. Being that the covering RE does not know me much she wants me to wait until my RE comes back next week. After things goes well she will release me to a ob/gyn near where I live. She does not want me to go to my old ob/gyn so she found one that she trust and want me to go to her. There will be communication between the both of them so I just have to travel once a year to see the RE but once things are settle. If I need to see the RE more often then I could. This will only happen when she clears me to go to ob/gyn. She wants to make sure that I get AF,there's is a correct diagnoses and treatment started. Let you know more when I go see my RE. Also in two weeks when I see her she will do another internal ultrasound to compare from the first one I had last month. Lets just hope that I get AF soon!
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Old 08-19-2006, 02:17 PM   #14 (permalink)
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I just don't know how to put this but I love my RE. She is very understanding and knows about PCOS. The only thing is the two hour drive is becoming a problem. She hasn't fully diagnose me yet and my appointment is in two weeks to get confirmation of it but I had to cancel the appointment. I made an appointment with a gyn near where I live the one she reccommended and have appointment on Monday. I know that I just started with her but it is becoming hard. I have this situation that my dad is disabled(he had two major strokes) and my mom just recently fallen ill with diverticulitis and kidney infection. She was recently release from the hospital last week. Now last night she had another attack and I had to take her back to the hospital and I did not come home until 1 am. My dad has a hard time understanding illness and he gets worked up about it. Since he had the second stroke he has a hard time with family members illness so sometimes we don't tell him because he can have another stroke that can kill him so doctors don't want him getting work up on things but in this case I had to tell him because I had to leave him alone. It's been a couple of years since he had the second stroke. Usually when I have this appointment I tell my neighbor to keep an eye on him but I don't want to rely on them all the time. My mother comes with me because he does not want my driving two hours alone, he gets worked up if I go alone. Is it okay to leave in the middle of a diagnoses? Why do I feel so guilty? I really don't want to leave her but with the sitution of my parent health it's hard. With this second attack that my mom had she might be facing surgery in the up coming week to remove damage part of intestines. So I want to stay close to home just incase something does happen. They both live with me. I don't know how to explain this to my nurse coordinator or maybe I just have fears to tell her. Will they understand? I want to call the nurse coordinator on Mon to let her know what's going on. Will they be helpful and release my records to the new ob/gyn? Why do I feel so weird about this? I really wish she was closer to where I live. Help me over come this fear of tell her.
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