SURVEY: What else have u been diagnosed with? - Page 99

tukeetukee · 04-21-2008, 12:53 PM

oh man. Here's the list for me: carpal tunnel, chronic migraines, poor vision, chronic sinusitis, HORRIBLE TEETH, chronic back pain (from an injury in 6th grade), chronic constipation, acid reflux, asthma, reactive arthritis, and now they're planning on doing tests to see if some of my chronic pain could be caused by fibromyalgia. fun, eh?

mdsmith · 05-04-2008, 12:28 AM

I M LOOKING FOR SOMEONE WHO HAS PCOS AND HAS HAD PORTAL HYPERTENSION, AND NASH. i HAVE HAD A COMPLETE HYSTERECTOMY DUE TO FINAL STAGE OF HYPERPLASIA AND CHRONIC HEMORRHAGING. i HAVE ALL THE ISSUES WITH PCOS INSULIN, WEIGHT, FERTILITY, AND NOW LIVER ISSUES. i HAVE TRIED LOOSING WEIGHT INTIAL LOSS OF 24 LBS AND THEN NOTHING. I AM CONSIDERING GASTRIC DUE TO THE LIVER ISSUES. IS THERE ANOTHER YOUNG PERSON AT 34 WHO HAS OR HAS HAD THE SAME ISSUES?

brittca · 05-04-2008, 02:03 AM

This is my first post on this site... but this is a great thread... so here I go.

1) PCOS Symptoms are as follows: 20+ cysts on each ovary, amenorrhea, high free testosterone, hair thinning, hair loss, chronic abdominal pain, acne, and almost anything else you can imagine... at my ripe age of 21.

Since I was 16, I've had so many unexplained medical problems... it would take an entire forum to explain them all.

lets make this simple:

1) IBS - constipation, diarrhea, cramping, and sharp pains
2) trouble with my joints - they all pop ... and I'm generally sore on the mornings...
3) Panic/Anxiety - Major problems with this... it's been debilitating at times.
4) Hypoglycemia - Low blood sugar, sometimes with high sugar spikes
5) Random appearing allergies - i.e. the birth control patch, some Band-Aids, and random medications
6) Chronic Headaches - I've had MRI's done.. all have been inconclusive for Pituitary Gland problems.
7) Massive Weight Gain - 40 pounds in one year...
8) decreased libido - self explanatory...
9) Chronic Lower back pain - might be associated with mild Sculiosis
10) Very bad vision
11) Plantar fasciitis

other random unexplained problems...

- I've had two instances of blood in my stool... (possible Endo?)
- Occasional trouble breathing, chest pain...

The only real diagnosis that I have is PCOS and possible Endo assiciated with the bowel... plus IBS...

It's sure been an interesting journey thus far... and seems very odd because I was completely healthy before I turned 16 or so...

any help would be awesome!

Edit: I forgot to add, I've had bouts of chronic yeast infections, as well as ongoing bladder infections. (I actually have one currently) ...

tukeetukee · 05-04-2008, 12:44 PM

Brittca, wow, you sound a lot like me.

I have LOTS of problems, and I'm only 18. :| Hope you get to feeling better!!

Mellon · 05-07-2008, 01:42 AM

Hi Ladies, Gees we are all falling apart arnt we lol
ok i have other then ALL symptoms of PCOS,

Hyperuriceamia (a kidney disorder), blind in left eye (birth defect), grey hair at 26, very painful disc narrowing in my back, painful feet, chronic cluster migraines, brittle teeth, severely knocked knees (3 operations havnt yet fixed it), i had my gall bladder removed, umm umm im sure theres more that i cant think of right now, oh i also have the skin tags and lots of them they can be removed though a simple snip at the gps.
have a great day
Mel

sabreena · 05-07-2008, 07:47 AM

can i be cheeky and ask if we all have a weight problem?? i have been told that weight is the main thing you need to get rid of to get rod of pcos symptoms, if thats the case i am gonna do anything to get rid of the weight nwo a si have had enough!

Kirst89 · 05-11-2008, 11:53 AM

i do have a problem with my weight but i didin't before my periods stopped for over 6 months. The doc says that the symptoms of my pcos only got bad coz i gained weight but im so sure i never gained any till after they caused my periods to stop!!

Ella831 · 05-12-2008, 08:12 AM

I have hypothyroid,gerd,leg pain, IBS problems,anxiety/panic disorder these are all things doctors have told me are not related to my PCOC. Only one doctor that I saw told me they were ALL related to my PCOS.

Yes,I do have a weight problem. I weight about 100lbs more than I would like,and about 75lbs more than I should. I have been told my several doctors to loose weight and it will help my PCOS. Funny thing to me is that when I only weight 115lbs I already had PCOS and was already not having periods,so how can loosing the weight help. Also no matter what I do I can't seem to loose it. One doctor agreed with me that for women with PCOS it is very hard b/c docs will say loose the weight,but then they forget that is a symptom/problem of PCOS and loosing that weight often doesn't happen.

lawyerlady · 05-18-2008, 07:41 PM

I was diagnosed with PCOS about two years ago but I'm sure I've had it a lot longer.

I have hypertension, chronic headaches, and parapsoriasis.

tiffanyleigh614 · 05-22-2008, 04:58 AM

i noticed alot of people saying about the bad eyesight.. i have horrible eyesight and i remember when i was first diagnosed with pcos and my sugar was all out of whack my vision was changing daily and the eye doctor said its something related to do your blood sugar and thats why diabetics vision can flucuwate ((SP)) so much.. so i DO think thats something from PCOS.. but other then real crappy vision i have
- IBS
- awful migraines which now are being treated and i'm doing much much better
- a cyst on my brain
- low immune system
- high blood pressure
- hump back
- liver damage
- terrible asmtha with chronic bronchitus.. through the winter i have bronchitus atleast once a month if not more

nothing else i can really think of at the moment

tiffanyleigh614 · 05-22-2008, 05:04 AM

gosh i know.. once when i went to the doctor from having so much pain with cramping but no periods he walked in and said wut can i do for ya.. and i jokingly said fix me.. and he just in a very rude manner told me to lose weight.. well duh i know i need to lose weight, i didn't come to the doctor for you to tell me i was overweight, he was so rude about it he kept going on and on and on to the point to where i was balling in his office he made me feel so low.. i finally got up and literally just walked out while he was talking. i had never been so degraded by a doctor before in my life. ive had doctors tell me before i needed to lose weight and it didnt bother me once cause i know its true.. but you have to take a different approach to things.. doctors are supposed to be there to help us.. not downgrade their patients.. oh and BTW the doctor who kept going on about my weight was pretty overweight hisself

OooooohBarracuda · 05-23-2008, 12:44 AM

Lets see.... I was diagnosed with PCOS in 2005 but it didn't end there!
*Hypo-thyroidism
*Insulin Resistance
*Anxiety and Depression; insomnia
*Sleep Apnia (spelling?????)
*Low Metabolism
*Acne
*Prone to warts and ingrown toe nails
*Fatty Liver
*Seasonal Allergies (which start in March and go until the first snowfall)
*Prone to unrinary tract issues and ear infections
*Skin Tags

Thank god I finally have a good set of doctors on my side for once! I don't know what I would do without them.

artjournalier · 05-23-2008, 05:11 PM

See my siggy.

Bipolar disorder, anxiety, a knee effusion (trauma related), migraines, allergies, and poor eyesight. I too sound like a hypochondriac!

Run down of meds:

600 mg Lamictal (bipolar)
50 mg Atenolol (migraines)
1 mg Clonazepam (anxiety)
600 mg Magnesium (migraines)
100 mg Imitrex (migraines)
60 mg Orilistat (Alli - my own OTC remedy)
25 mg Pfenegrin (migraines/nausea)
1000 mg (i guess that would be a gram?) Glucophag (PCOS)
and I've been prescribed 800 mg Advil for my knee.

Is it sad that I had to get out my 7 x 4 compartment pill case to remember all that?

artjournalier · 05-23-2008, 05:15 PM

Oh, yeah, forgot to mention the three complex ovarian cysts that landed me in the hospital...

rabr25 · 05-28-2008, 10:41 PM

Hi everyone. I am new at this. I recently been diagnosed with PCOS this feb of 08. I knew something was wrong from having my second child. I also have IBS and arthritis in my lower spine. I have been diagnosed with carpal tunnel in my right wrist. So pretty much I am in pain all the time. I spoke with a few cysters on another site and they said that IBS is another problem with PCOS. Gosh since I have had PCOS my body seems to wear down. I am not taking any other meds yet. I am taking only yasmin for BC and pain meds. Hope this helps. Oh by the way, my name is Ruth. Nice to meet everyone.