Two diagnostics, one says yes (PCOS)the other says no

LOVETEA · 12-09-2008, 12:34 PM

I am confused, maybe you girls can understand better. I went to the gyn and he did a pelvic ultrsound at his office and he said he saw around 7 follicles on one side of around 8mm and that was PCOS.I went to have a professional pelvic ultrasound to have something in paper. The radiologist said this is not PCOS you are perfectly normal, you don't have any cysts, PCOS is not like this, your ovaries are the perfect size, PCOS are like a pearl necklace around the ovary, you do have follicles but that is normal. A day later I got hormonal results from my family DR. all normal...I am so confused!!! What do you girls think?!!!! I don't have anyother symptom, I get my periods every 28 days, I am thin. I do have 10 hairs under my chin that I pluck weekly.

TVproducer · 12-09-2008, 05:49 PM

Hey There,

It is very confusing isn't it. Well, just so you know, I was told that I have "textbook ovaries" and there aren't any cysts to be found. Some doctors don't acknowlege this, but you don't have to have cysts to have PCOS. My experience was that my OBGYN woudl only diagnose me with PCOS if I had cysts, but my endo actually did all of the tests and concluded that I am insulin resistent and I do have PCOS. The bottom line is that not all doctors know enough about PCOS to realize you don't have to have cysts to have PCOS. I haver "perfect ovaries" but I have PCOS. You just have to find a doctor that really knows about PCOS.

"A PCOS diagnosis cannot be made entirely on the basis of the ultrasound alone since not all women with PCOS have cysts.
This may seem contradictory. Why call it polycystic ovary syndrome when not all women have cysts? It is because PCOS was identified (originally as Stein-Leventhal Syndrome) many years ago based on the presence of cysts in the first known patients. Conversely, not all women with cysts have PCOS. The presence of cystic ovaries does not always mean that you have the syndrome.
If PCOS is suspected, your physician may recommend an extensive check of your endocrine system."

This was pulled from one of the articles on the homepage of the soulcysters.net. If you want to read the entire article, here's the link. http://www.soulcysters.com/do_have_pcos.html

I hope that answers some of your questions- just know, where in the same boat. It actually took me over 2 years to find a doctor who would ackowlege that something was wrong with me. Hang in there and just keep pushing and be strong!