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Old 05-01-2004, 09:58 AM   #16 (permalink)
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Name: Jes
Age: 18
Family situation: Engaged to my dearest for nearly a year. Recently moved into a shared home with him. Hoping to get married this winter.
PCOS symptoms: Excessive cysts. Obesity. Hair all over the place!! Depression and mood swings. Possbley Inlusin Resistance, being bleed for tests at the moment.

Worst thing about PCOS: Hair, Weight, and NEEDLES ergh
Medication used: None
NHS or Private NHS - NHS. Was suspected to have PCOS when I was 14. Finally confirmed last year. Since October last year I had to go through 8 doctors to finally find a doctor whose willing to treat all my symptoms.
PM or Email? PM, Email.... Tis all the same.
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Old 05-02-2004, 07:34 AM   #17 (permalink)
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Name - Fiona (georgy is a tribute to my dad George)

Age - 33 in September

Family situation - Live with Stephen.

PCOS symptoms - infertility, hirsuitism, obesity, skin tags, acne, thinning hair on scalp, mood swings (oh yeah baby!), Irregular cycle - had 3 periods in 3 years, cysts on ovaries.

Worst thing about PCOS - all of them, it really does get me down if I let it. the facial hair and obesity are the worst though.

Medication - was on Dianette, and metformin but they disagreed with me.

NHS or Private NHS - NHS

PM or Email? whatever...

Any other information - would like to hear from anyone who has adopted in the UK. also, any scot' cysters!
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Old 05-13-2004, 08:40 AM   #18 (permalink)
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Name: Michelle

Age: 23

Family situation: hhmm I still live @ home with my parents & my sister!

PCOS symptoms: I didn't start my periods until I was nearly 17 and ever since then, they have been very irregular. Also acne on my face, chest & on my scalp which is painful too and excess weight. Have very slowly started to lose some of the weight but going to the gym every day is tough but now I know I have to or it'll get worse is good motivatoin.

Worst thing about PCOS: Having bad acne when you're an adult isn't much fun, it dents my self-confidence quite alot. Also costs fortune in make-up trying to cover it up! hehe! Being over-weight makes me quite depressed, although I don't consider myself huge, I'm only a size 14/16. In your average fashion clothes shops here, they very rarely have many nice clothes in size 16. It really frustrates me!

Medication used: I only started taking Dianette this week. I'm very sceptical about it after reading up alot about it. I'm seriously considering stopping medication & just not bothering but it's not advised so I'm not too sure what to do.

NHS or Private NHS: I've attended my local NHS surgery for a few years complaining of very irregular periods, acne & weight gain but a few different MALE doctors just cast it aside and said that as I got older, my periods will get regular & I should eat more healthy (when I already do!). Basically, I felt like I was wasting theit time because of this. I went back again a FEMALE doctor quite a long time after. She was very supportive & explained exactly what she thought my problems were & exactly what she'd be sending me for tests for, she went into great detail. I was so releaved that I was being taken seriously and it wasn't my imagination or something I'd done wrong (well, you do begin to wonder all sorts of things when nobody seems to be able to help, don't you?!)

PM or Email? Feel free to PM me, then I'll give you my email address. I do have MSN too & am on that most evenings! I'd like to tak to other ladies with the same problems

X Michelle x
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Old 05-21-2004, 01:16 PM   #19 (permalink)
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Name: Suzanne

Age: 24

Family Situation: Single. Still living at home with my parents. With these house prices I don't think I’m ever going to leave!!!

PCOS Symptoms: Irregular periods, excess hair, overweight (especially around the middle), lethargy, PMT!

Worst thing about PCOS: Where do I start! I hate being overweight but am trying to do something about it. My periods are only regular because I take the pill. When I wasn't on medication they were about one every 5 months and when they do come they are extremely painful and heavy.

Medication: Tried all contraceptive pills and have finally settled on Yasmin which seems to be working ok. Tried Met but didn't get along with it.

NHS or Private: My previous GP was a complete cow! She refused to believe I had anything wrong with me and told me to go away and lose weight and my periods would come back. I was finally diagnosed at a well woman walk-in clinic when I was 17. I have now changed GP's. Things are still not great but they are ok. However, I sometimes feel that he would give me more support if I were TTC instead of just trying to cope with PCOS. I was diagnosed 6 years ago and haven't even been referred to a gynaecologist. I'm looking into seeing a Private gynaecologist soon.

PM or Email: Either would be great. It would be great to hear from any fellow sufferers.
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Old 05-26-2004, 02:34 PM   #20 (permalink)
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NAME Gwen

AGE 33

FAMILY married to alan just on 14 years now and have two boys
liam and patrick (twins) who are 12

PCOS SYMPTOMS over weight but lost a lot last year, spots, and quick growing hair in not so nice places.

WORST THING ABOUT PCOS irregual periods and everything that goes with it

MEDICATION USED was put on meformin then taken off it as it made me really ill,then four months of clomid but have finished that now

NHS OR PRIVATE nhs, it taken me about 8 years for gp to see that there was something wrong but now under aferlility doctor and hoping to start treatment in the next couple of months


PM OR EMAIL, pm lovely talking to people
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Old 05-26-2004, 06:37 PM   #21 (permalink)
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Smile I'm another one!

Name: Julie

Age: 27

Family situation: I live alone, totally single and pretty independent

PCOS symptoms: I had regular periods. Then I didn't have any periods for about 3 -4 years, then they were irregular - but now pretty normal. I have acne, total body hair, mood swings and excess weight.

Worst thing about PCOS: Defo the hair - weight probs arent far off tho! Makes me wanna cry!

Medication used: I started taking Metformin 3 weeks ago and was very nervous about it! But seems to be going ok so far

NHS or Private NHS: NHS

PM or Email? PM me I have MSN too & am on that most evenings! It would be good to have a pcos buddy
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Old 05-30-2004, 06:55 PM   #22 (permalink)
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Name: Bianca

Age: 38

Family situation: Married to Gary for almost 20 years, 2 sons - Chris 18 and John 13. Got pregnant with John with Clomid. Miscarried 3 times between the boys.

PCOS Symptoms: very irregular periods, weight, excess hair (thankfully not on the face) mood swings

Wost thing about PCOS: mood swings and not being able to loose any weight. Going to try a low carb as all else has failed.

Medication: Just started on Yasmin - not sure if that's the right thing because I am now the moody ***** from Hell!

NHS or Private: NHS

I was diagnosed (finally) last year after years of being irregular. Because Gary has had a vasectomy (about 3 years after having John) it didn't really bother me but a couple of years ago I got to the stage where I wanted to know why.

Email or PM: either. Be nice to talk to a fellow sufferer - am on here most nights!
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Old 07-05-2004, 12:01 AM   #23 (permalink)
Jassie
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Name Jassie

Age 34
Family situation Live with my wonderful supportive partner who is a cartoonist called Darwin!


PCOS symptoms initial symptoms: Infertility, overweight, headaches, hypoglycemic (sp?) Diabetes type II, Severe cramps on rare occasions, AF has always been regular and normal so guess I am lucky there!

Worst thing about PCOS Its taken 18yrs of misdiagnosis to finally be diagnosed!

Medication used currently: metformin, folic acid, aspirin

NHS or Private NHS - nhs

PM or Email? pm. my pm box is always very sad.

Any other information I live in Bracknell, Berks and have a westie called Hamish, My sister has also been diagnosed with pcos and diabetes so its great we can support each other.
I dont work atm but have lots of hobbies! I am also a reiki Master and have diploma in crystal healing so have been looking at bringing in those therapies for these types of illnesses
My home page has more info about me: jassie.co.uk

::EDIT:: Moved to Mablethorpe Lincs in Jan 05 to live closer to DB's family after a m/c in dec. In Feb discovered Im pregnant again! Conceived on just met both times
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*~*Jassie*~*
Jassie 35 Darwin 30
Dx Pcos and Diabetes II June 2004
Met 1500
Baby aspirin
Simvastatin
Folic Acid

[color=Purple]21/02/05 3 days late - BFP!(strong blue line!)
Stopped met and sim kept aspirin, folic acid and on insulin
Scheduled C-section 19th Oct 2005

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face="Verdana">we're expecting!


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Old 07-19-2004, 11:54 AM   #24 (permalink)
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Name: Michelle

Age: 24
Family situation:I've been married for almost a year to my lovely husband Geoff with 3 cats (Yoda, Cody and Tigger)


PCOS symptoms initial symptoms: I've never had a period, centrally obese, facial hair.

Worst thing about PCOS: Not getting pregnant and looking like Chebacca

Medication used currently: metformin, although I've been on it for 2 years and it's done sweet FA

NHS or Private: NHS. My docotr is fabulous, my endo is bl;oody useless and has refused to treat me unless I lose 1 more pound (I've lost 3 stone in 2 years)

PM or Email? Anything!

Any other information: Geoff and I have become so disilussioned with any treatment for my condition that we have stopped totally. I know this may sound a bit drastic but I've had enough of condesending doctors and unsupportive nurses (One told me to 'buck my ideas up' when I said I couldn't make an apointment because of a family emergency). So we are being approved to be adoptive parents.
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DX Febuary 2002 after miscarriage
TCC for 4 years.........DH very very happy bunny.
Now on 1000mg of Gluc XR +vitex pre natal vitamins
Lost 3 stone so far!!
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Plus lost lots of hair (not so good) but it's growing back since on the multivitamins


'I am always called a feminist when I exhibit personality traits that differ to that of a doormat,'
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Old 07-25-2004, 03:27 PM   #25 (permalink)
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Unhappy Me

Name: Hannah
Age: 18
Family situation: Single
PCOS symptoms: Overweight, Excess hair, irregular periods (controlled by BCP)
Worst thing about PCOS: As above
Medication used: Dianette
NHS or Private NHS: NHS.... my GP is so good!
Action taken against PCOS: New diet, the G.I Diet, which is proving successful(so far) and enrolling in the gym within the next few weeks!
PM or Email? PM fine
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Old 07-27-2004, 09:30 AM   #26 (permalink)
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Name: Lyn

Age: 29

Family situation: Married to Paul for 7 years, together for 10. (He's so patient with my mood swings!!)
Daughter Rosie, almost three. Son Daniel, miscarried at 21 weeks. Both conceived with Clomid.

PCOS symptoms: Infertility, overweight, irregular periods, mood swings, depression

Worst thing about PCOS: Everything particularly Infertility!

Medication used: Used 50mg Clomid & HCG jab for both previous pregnancies. Trying again now on 100mg clomid (had one course last month and no follicles developed?!)

NHS or Private NHS: NHS - Sub fertitility sister is just so lovely!

Action taken against PCOS: just started swimming twice a week, and GI diet - we'll see how that goes!


Other info: Diagnosed with PCOS in 2000 when ttc Rosie. I work as a part time secretary and I hand make greeting cards in my spare time(which isn't much!). If clomid doesn't work this month, we are going to take a break and relax for a few months with no pressure to concieve
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Old 08-07-2004, 10:24 AM   #27 (permalink)
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Name : Silena
Age : 24
Family Situation : Living with partner of 8 months
PCOS Symptoms : Weight gain, Acne, Mood swings, Dark patches of skin, Abdominal pain, Cysts on ovaries, Fatigue, Irregular periods, Kidney infections, Bloatedness, Excess hair on body and hair falling out on head
Worst thing about PCOS : All of it
Medication used : *Metformin - currently 1000mg a day (will eventually rise to 2000mg)
*Dianette
*Painkillers - Voltarol, Co-dydramol
*PanOxyl Acne Cream

NHS or Private : NHS
Action taken against PCOS : Trying to lose weight by lowering carb intake as counting calories was doing nothing.
PM or Email : I don't mind either
Any other info : Diagnosed with PCOS in April 04, had severe symptoms since Dec 03 and more than likely had it for a long time before I was diagnosed. I was taking the birth control pill Cerazette when I found out I had PCOS.
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Old 08-13-2004, 09:41 PM   #28 (permalink)
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Talking pleased to meet u all x

NAME - Laura

AGED- 23

FAMILY - I live with my partner of 7 years. I have one sister who i think also suffers from pcos and one brother who both live with mum and dad.

PCOS SYPTOMS- Horrible rough facial hair and on whole body so bath time is fun loads of shaving ( gross) , spots and no regular periods for nearly three years , they come twice a year roughly . mood swings and bad stomach cramps.

WORST THING- The hair and not getting pregnant , people not understanding what pcos is..................

MEDICATION- The doctor had put me on Yasmin pill and one other but i cant think of the name .He said it will help to give me periods?

NHS OR PRIVATE- Nhs im sad to say , it took the doctor nearly a year to tell me that i had pcos after all the tests and seeing all the specialists.

ACTION TAKEN - none , all the doctor said was to go onto the pill and see what happens and then come back in 6 months , but if im looking to have children soon then to come back and talk to the doctor who will discus the options and then prescribe me hormone pills and if not then ivf.

PM OR EMAIL - please pm me if u would like to talk

ANY OTHER INFORMATION - Just if your doctor took so long .
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Old 08-24-2004, 07:24 AM   #29 (permalink)
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Default newbie

[b]Name Trudie
Age 28
Family situation Married for 10 years to a wonderful man, no children, not trying for children.
PCOS symptoms
Multiple cysts on both ovaries diagnosed by scan
Pelvic pain
Some facial hair
Depression/mood swings
Worst thing about PCOS Lack of sex drive
Medication usedNothing
NHS or Private NHS - I was referred to a Gynae by my GP, who thought I had endometriosis, and saw a Gynae from the Borders General Hospital (Scotland) last week, who diagnosed PCOS.
Action taken against PCOSStill dealing with the dianosis! But I do follow a low carb diet, because I have hypoglycaemia, so I will stick to that more rigidly. Might look into some alternative remedies too.
Anything else?
I am covered in bruises, which I can't account for, and they seem to be worse in the second half of my cycle. Does anyone else get this? I don't mean bruising easily, so much as bruising from no apparent cause.

Trudie
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Old 09-09-2004, 02:30 PM   #30 (permalink)
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Thumbs up uk/irish cysters

hi folks im too from the uk, Essex to be procise

I was diagnosed with pcos in june so am still learning how to cope with everything

I have been very very down about it but am trying to concentrate on more good things ;
Next year in July I get married
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