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Old 03-08-2009, 04:12 PM   #1 (permalink)
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Hi all,
Been to and fro docs for a couple of months now as not had a period for nearly 5 months. I was on Cilest for about 10 years and never had any problems so we guessed it may just be a build up from the pill and doc advised me to come off for a month or two. Did some pregnancy tests to make sure and were all negative. Doc did smear test and checked for cysts - said she didn't find any. So anyway, after being off pill for 2-3 weeks, I went back and she took some bloods. She phoned me the next day to say my testosterone levels are high and its most likely to be PCOS, although she was surprised by the result as she hadn't expected this to be the diagnosis as I wasn't displaying any of the other symptoms - no weight gain (i.e. been 9 and a half stone for bout 2 years!). I'm naturally very dark and always put my hairiness down to this but now I'm wondering, is this because of PCOS?! So few questions for all you PCOS girlies out there: -
1. Does PCOS get worse with time? Does your fertility decrease with time i.e. should we start trying now for a baby rather than wait until after we're married in a couple of years?
2. Are there any foods/food groups I should be avoiding to lower my risk of diabetes - should I go on a GI diet or Atkins for example?
3. Has the PCOS developed as a result of something I have done? Or not done? i.e. I went through a phase of only eating one meal a day and having a very low calorie intake, would this have triggered it?
4. Why would the PCOS raise its head now whilst I was on the contraceptive pill? I've read that usually the contraceptive pill counteracts the effects of PCOS to regulate you - does this mean that I have it more severly than normal??
5. If I do have a severe form - are there are any others of you with this that have managed to concieve - is it basically a total no-no to kids once you have it or what?
6. Is there something to regulate/reverse it? Is there a 'cure'?

Any help/advice you could give would be really useful

Thanks
xxx
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Old 03-08-2009, 04:32 PM   #2 (permalink)
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welcome to sc

1. I think my pcos is about the same as when i got diagnosed 9 years back.
2. I did have some success with the low gi diet. Plus i dont eat wheat/dairy any more.
3. Hon, youve done nothing to 'get pcos' its just one of those things that happens.
4. I cant take the pill, makes my bp/weight go wayy up
5. I have a son who is nearly 12.
6. pcos cant be cured, but can be managed.
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Me - 42, hubby 37 son 12. Married 15 years

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Old 03-09-2009, 08:53 AM   #3 (permalink)
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Thanks so much for the message, really useful to know that I may still be able to have children, that's been the main concern really. My hubby to be and I are now both considering trying to concieve now rather than wait but if there's no rush, i.e. it doesn't get worse with time then we can still concentrate on enjoying our wedding and being married for a while before trying.
Did you try the low GI and avoid wheat/dairy because of weight related issues or to avoid the risk of diabetes? Only luckily I'm quite slim and I don't really have a problem with the weight but I am concerned about diabetes so would like to change my eating habits to minimise any risk of this.
Was anyone else already on the pill when the PCOS was diagnosed? How did it affect you? Everything appeared to be fine until about 6 months ago?! I have now come off the pill (in the last 2/3 weeks) - should I go back on it?
Any suggestions for managing it? Is it just diet and contraceptive pill or is there anything else I can be doing to increase my fertility for the future? Any particular vitamins or herbal remedies? Any forms of exercise to avoid/encourage?
Thanks girlies
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Old 03-09-2009, 02:52 PM   #4 (permalink)
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Hello and welcome to SC

I had come off of the pill when I first started experiencing PCOS properly [the pill is a way to manage it]. There's no saying how long it will take TTC... It depends what works for you. I conceived using clomid and it took me 4 rounds. So it didn't take too long all in all. I would encourage the low GI diet and excercise as well as a way of controlling it. I hope tht helps somehow!!

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Old 03-10-2009, 04:39 PM   #5 (permalink)
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Hi and Welcome!

I'm kind of new to this site too, but echo many of the questions you've put out. Hope you get the answers you're seeking.
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Old 03-12-2009, 08:43 AM   #6 (permalink)
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i did low gi cos i wanted to contol/reduce my weight. But ive kind of not behaved recently, so i must get back onto low gi.

i stopped wheat when i found i am intollerant to it, makes my stomach bloat horriblly/pain/weight gain.

I personally cant get on with the pill, but i know some ladies find it good.
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PCOS, LOCAH, Endo, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Colefac, multi vits,

Me - 42, hubby 37 son 12. Married 15 years

She is buffeted by the wind, but she does not sink.



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