The nurse called back yesterday evening, luckily I was still at my desk. Apparently she had to call the hospital to get the report, they didn't bother to send it over! Lovely hospital. Not!
Anyway, according to the report, everything was completely normal. I can agree w/ that, I saw the screen the entire time, and it wasn't like there were any scary lumps or anything. So, my Dr. will be in the office today, and she'll get a chance to look it over. Interesting to note, nowhere on the report does it say whether it was internal or external. Just that its a pelvic ultrasound. Convenient to not note their screwup, no?
When I hear back from the Dr today, which I'm supposed to, or call her back this afternoon, I'll update again. GRR I just want this resolved!
PS anyone ever heard of someone w/ pcos having NO cysts?!
PS anyone ever heard of someone w/ pcos having NO cysts?!
YES!!
From the time I was DX w/ first scan.(No cysts) to 18 months and 2 more scans later the cysts finally showed up!!
Just because you don't have any now, doesn't mean you won't develope them!!
Consider your self lucky to be at an earlier stage of PCOS so hopefully you can avoid getting to that next stage!
Patty
__________________ Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)
Check this link out for more information!!
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PCOS is a PROGRESIVE disease. The symptomschange as time goes on. They don't all hit at once.
Each woman and her body is different with how it reacts to cell invaders. Some women will be more sensitive to certain cell factors. Thus giving reason to the different effects on hair, weight, thyroid, IR, diabeties, heart disease, sleep disorders, depression, cysts, AF issues, etc.
Each subject is a different issue with a different trigger for each woman.
But then they all can be directly linked to one another in the trail of PCOS.
That is why our symptoms vary from person to person. It is all an individual reaction to the cell change.(Your body will react differently to change than mine will).
I hope that helps
Patty
__________________ Endometriosis (Infertility Cause)
Andnomyosis (Infertility/Miscarry Cause)
Fibroid tummores(One reason for Non stop AF)
Tubal ligation syndrome(Sister of PCOS)
Check this link out for more information!!
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Great! So she called me back, and wants to do...NOTHING! "wait and see how the next cycle pans out"
Hello?! How many screwed up cycles do I have to have before someone will do something!? I'ts getting very very frustrating to say the least. I'll be very glad when my new insurance kicks in and I can transfer to an ob/gyn office w/ a different focus than the one I have now. I like them, but they are not what I need right now, obviously!
Oh, and Patty, I'm not a recent dx, I was dxd three and a half years ago, and have symptoms dating back to, well, puberty, I guess. They just now finally did an ultrasound, since with all the issues I've had over the years, nobody ever did one! Just really really frustrating that they don't seem to understand that I know something is not right, and I want it resolved. I don't like feeling miserable so much, being tired all the time, etc. It's not like me! I just wanna go home and cry and vent some of this frustration, but I can't, I'm stuck at work! GRRR
They aren't going to do *anything* right now. Not bloodwork, not anything. All I know is that my hormones are not where they should be, and the dr refuses to do anything. They want me to wait until my next cycle and see if its "normal". Hello, I have been getting progressively less normal each time, for the past 3 cycles. What do I have to do to get them to figure out why?!
Basically, my plan now is to say screw it, deal with the issues for now, maybe start vitex and see if that plus the met will equal things out, and just wait it out for my new insurance to start. Once that happens, I'll be required to get a new doctor, as my present ob/gyn is not covered under the new policy. Do I mind? Nope! And if the new ob/gyn won't help, I can go directly to an Endo or RE, since we're a PPO and don't require referrals to see specialists.
Just really frustrates me, since I was under the impression, that once the ultrasound was done, if that didn't reveal the answer, they would try other things to find it. Apparently I was wrong. They don't seem to mind that I've not felt anywhere close to normal for over 2 months now. Stupid doctor...
That is lame...bloodwork is relatively cheap testing, and they should do a good panel on you every year, for Pete's sake, especially since you're on Met. I'm sorry they are being such goons.
I wonder if you have a thyroid issue or something. It is so irresponsible of them not to treat you properly! What jackasses.
They did some simple panels like thyroid, liver and kidney back when they put me on met in April, but I've had no followup testing of any nature, and none is scheduled. And they didn't check any of the sex hormones then either, just things like TSH. I know my thyroid isn't it, that was one of the checks they did in April, but hello?! Something has changed, and drastically at that. I guess it's just that the focus of the clinic I go to is more on birth and "natural" things, not figuring out why something is not occuring "naturally". Curse the naturalness! Oky, not really, but it really annoys me anyway.
I want to say something here, unless you are seeing someone who specialises and is very familiar with PCOS, then dont believe ANYTHING they say.....
Let me share my experience....
I decided that it was time to get my diagnosis (I had suspected PCOS for 3-4 years).... so I went into my doctor, told him everything, TTC 4 years nothing, no periods, excess hair etc and I was sure I had PCOS. So he scheduled me for some blood tests and an ultra sound--- exactly what I expected to get my diagnosis. He told me if I had PCOS I would have cysts (Which I have since learnt isnt always true).
So I went to my u/s appointment, they did both an internal and external u/s. Then I went and had my blood tests done, and waited. I was 100% sure they would call me, say I had PCOS and we would work out where to move on from there.
Finally 4-5 days later I got a call from the nurses assistant, she said the blood tests came in and everything was "normal". I asked her about the u/s, they didnt have it. She said she would get it and have the doctor review it.
I got off the phone in tears, how could everything in my blood test be normal??? I can grow a beard better than my husband, how could my testosterone be normal??? My only solice was that he hadnt reviewed my u/s.
So I waited a few more days, and got a call back. from the assistant again. She said my doctor reviewed the u/s, again everything is "normal"........ it had been made clear to me in my 1st appt that if everything was normal, then I was just too fat to have a baby, there is nothing wrong go lose weight.
I cried and cried, I was depressed for 2-3 days. If there was nothing wrong with me, then it was all my fault, im just too fat. Im normal, no PCOS despite all the symptoms, and I worried... what was wrong with me????
A friend of mine refered me to her OBGYN, she has PCOS and her OBGYN specialises in infertility. I wanted a second opinion.
I had to wait 2 months for my first appt with him, the whole time was awful.
In my first appt I explained to him all that had happened, all my symptoms, what the other doctor had said, that my u/s and blood tests were completely normal. He was the kindest doctor Ive ever seen, he explained a lot about PCOS, and diagnosed me just based on my knowledge and symptoms. He trusted that I knew my body and what was going on. He made the comment that I probably knew more about PCOS than half the doctors out there. He started me on Met and asked me to come back in 2 weeks with the u/s film and my blood test results.
When I went back he reviewed the u/s...... of which showed many pearl like cysts, including a large one. The company that did the ultra sound had commented I didnt have a left ovary (Which of course I do, its just hard to find cause it hides behind my bladder)..... so what about that was NORMAL???????????? The u/s had plenty of cysts, and they said I had no left ovary??? Oh yeah, I could see why they would call me, say it was normal.... MY BUTT!!! he reviewed the blood tests which of course were "normal" according to my doctor, but yet again all showed the classic signs of PCOS. I honestly believe that he just didnt know what he was looking for..... it required someone who was familiar with looking at the ovaries of women with PCOS to recognize it. The same with the blood results.... they just didnt know what to be looking for.
Sorry this was long, but the moral of the story is, NEVER trust anyone when they say your results were "normal" LOL
Cysts come and go, you can have none one u/s, then multiple the next, depending on the time of the month and other things.... so even "IF" your u/s do show no cysts, that doesnt mean a thing!!!!!!
I would NOT accept the "wait and see what happens" answer... FIND yourself a GOOD doctor now
Darlene
__________________ Darlene (25) Married to EJ (31) TTC naturally since 06/01, TTC w/ medical intervention since 04/05. Diagnosed: 06/02/05 ** All rounds of Clomid and Femara a big fat BUST! Furbabies: Mum to 4 beautiful Rat Terriers
Metformin 1500mgs Weight Loss: 338/167/170 -171bs
GOAL!!!!!!!!!!
TTC again after weight loss surgery on 03/20/06.
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Last edited by Darlene123; 08-18-2005 at 06:57 PM.
I'd love to go to a different doctor, but my current insurance won't let me. My new insurance kicks in come October, and lemme tell ya, I'll be seeing someone new ASAP when that happens. The group that the new insurance covers is a great one, they are well known around town for being good doctors, and several of them specialize in fertility issues. So, I figure it this way, I've had PCOS my whole life, is it really going to kill me to wait 6 more weeks to go to a proper dr who understands this accursed syndrome? Nah, I don't think so. (and I'm considering flipping them the bird and starting vitex in addition to my met, maybe that'll help something)
And all other things aside, I'm really getting more and more convinced that this recent chaos is due to a very early miscarriage in July. I knew something was distinctly different then, not bad, but different. Then af showed up a day early, was exceedingly strange, and things have been funky since. Would explain a lot about why the next cycle was loony too. Maybe now that I've gotten that all worked out of me, I can go back to a normal cycle. If not, 6 weeks is only 6 weeks, and time flies when you're busy, and I'm certainly that!
Thanks for your story Darlene, that sounds terrible, but luckily I haven't had that problem. Just that my current dr's aren't of the focus I need. Their perspective is that if it isn't causing a "serious" problem right now, don't treat it right now. They are a birth center after all, but they are my only option for now. So, screw them, I'll stay on my Met, and as soon as the opportunity presents itself, I'm off to a new Doctor!
Ultrasound update 
