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12-09-2006, 12:12 AM
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#1 (permalink)
| | Living Strong
Join Date: Oct 2006 Location: Sweet Land of Liberty
Posts: 417
My Mood: Points: 3,007.40 Bank: 17,490.76 Total Points: 20,498.15 | Useful Thyroid Sites I couldn't find a list on here, so I thought I'd post my fav thyroid info sites and you all can add on yours too:
-Endocrine Web: www.endocrineweb.com (one of my favorite thyroid sites)
-ThyCa: www.thyca.org (Thyroid cancer mainly, but helpful in all areas)
-American Thyroid Assoc: www.thyroid.org
-Thyroid Manager: www.thyroidmanager.org
-Medline Plus: http://medlineplus.gov (more of a search engine style, but very useful)
Cynthia
__________________ Proud Marine Wife To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
Proud Mom of DS (3 yrs) born in Korea AND
DS2 (17 mo) waiting for us in Korea! (traveling June 10!!)
Thyroid Cancer Survivor since 09 April 2004 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
If you are going through hell, keep going.
~Winston Churchill |
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12-10-2006, 02:23 PM
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#2 (permalink)
| | Not so Newlywed Cyster!
Join Date: Apr 2005 Location: England
Posts: 680
My Mood: Points: 10,739.15 Bank: 18,455.08 Total Points: 29,194.22 | Thanks for sharing! I will have a good look at the websites, hopefully they will be able to help answer some questions! 
__________________ Me (28) To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. DH (32) Married 30th December 2006 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Mummy to 3 furbabies To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
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01-04-2007, 10:21 PM
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#3 (permalink)
| | This Cyster Is Losing It!
Join Date: Aug 2002 Location: Chicagoland
Posts: 637
My Mood: Points: 1,478.64 Bank: 1,156.23 Total Points: 2,634.87 | These sites are so informative. Thank you! 
__________________ "Life is full of blessings, not all are seen." To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
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01-04-2007, 11:35 PM
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#4 (permalink)
| | Expecting a Miracle!
Join Date: Jan 2001 Location: USA
Posts: 1,292
My Mood: Points: 20,775.12 Bank: 331,604.36 Total Points: 352,379.48 |
__________________ Laura (Hypothyroid) (38)~Soulmate of Victor (41) Est 4.1.96
~ Mom to:
~DS J 16
~DD A 5 (Hypothyroid)
~DD Z 3
~DD A 2
~Zaranda Noelle Coming Sept 2008 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
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Check us out To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. |
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05-31-2007, 02:12 AM
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#5 (permalink)
| | Registered User
Join Date: Nov 2006 Location: Northeast , USA
Posts: 46
My Mood: Points: 1,436.19 Bank: 0.00 Total Points: 1,436.19 | May i recommend another site? I find this to be my favorite: www.stopthethyroidmadness.com. |
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11-05-2007, 04:37 PM
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#6 (permalink)
| | Surviving PCOS
Join Date: Oct 2006
Posts: 679
Points: 1,320.58 Bank: 1,192.40 Total Points: 2,512.99 | Thanks for sharing.
__________________ ~Kat To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
F, 44, 5'7" PCOS Dx: Feb '06
Diabetes & Hypothyroidism Dx: Nov '07 Metformin ER, 1000 mg: 7/21/07, Increased to 2000 mg 2/8/08
Levothyroxin, 25 mcg: 11/6/07, Increased to 50 mcg 2/8/08 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. |
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11-06-2007, 12:33 PM
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#7 (permalink)
| | Registered User
Join Date: Nov 2006 Location: Northeast , USA
Posts: 46
My Mood: Points: 1,436.19 Bank: 0.00 Total Points: 1,436.19 | Quote:
Originally Posted by scmj26 | Just an update, the forums are now on their new site: http://www.realthyroidhelp.com/ same moderators and all! |
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12-07-2007, 03:57 PM
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#8 (permalink)
| | Registered User
Join Date: Apr 2006 Location: Houston, TX
Posts: 161
My Mood: Points: 5,971.28 Bank: 0.00 Total Points: 5,971.28 |
__________________ Ashley To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. |
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03-01-2008, 01:15 AM
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#9 (permalink)
| | Registered User
Join Date: Feb 2008 Location: Texas
Posts: 58
My Mood: Points: 275.43 Bank: 535.86 Total Points: 811.29 | I have had an impossible time getting a diagnosis for Hypothyroidism, despite having every symptom I pasted below. Symptoms of Hypothyroidism - Fatigue
- Weakness
- Weight gain or increased difficulty losing weight
- Coarse, dry hair
- Dry, rough pale skin
- Hair loss
- Cold intolerance (can't tolerate the cold like those around you)
- Muscle cramps and frequent muscle aches
- Constipation
- Depression
- Irritability
- Memory loss
- Abnormal menstrual cycles
- Decreased libido
Is there anything aside from the one blood test for diagnosis. They've done the blood test at least 6 times over the last 3 years and it has yet to come up positive. |
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03-03-2008, 12:30 AM
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#10 (permalink)
| | Registered User
Join Date: Mar 2008
Posts: 13
Points: 252.04 Bank: 0.00 Total Points: 252.04 | Quote:
Originally Posted by minnemommy I have had an impossible time getting a diagnosis for Hypothyroidism, despite having every symptom I pasted below. Symptoms of Hypothyroidism - Fatigue
- Weakness
- Weight gain or increased difficulty losing weight
- Coarse, dry hair
- Dry, rough pale skin
- Hair loss
- Cold intolerance (can't tolerate the cold like those around you)
- Muscle cramps and frequent muscle aches
- Constipation
- Depression
- Irritability
- Memory loss
- Abnormal menstrual cycles
- Decreased libido
Is there anything aside from the one blood test for diagnosis. They've done the blood test at least 6 times over the last 3 years and it has yet to come up positive. | What specifically is the doctor measuring? TSH? Free T3 and Free T4? They really need to look at all three in combination with the biggest indicator that TSH should be between 2 and 3 (max) and the closer you are to 2 the better. My doctor noticed my TSH was high and T4 was lower (I was on 50 mcg of synthroid (T4) so she prescribed T3 (cytomel) which is used to help convert T4.
After 3 months I had my blood retestedd and the TSH was lower, T4 was better and T3 was normal. At that point she started bumping up my T4 and every 3 months I've been retested with improvements in my TSH number (i.e. lower) but it's still not at 2.5 yet and I think we'll shoot for the 2 TSH level.
I hope this helps. |
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03-03-2008, 08:43 AM
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#11 (permalink)
| | Registered User
Join Date: Nov 2006 Location: Northeast , USA
Posts: 46
My Mood: Points: 1,436.19 Bank: 0.00 Total Points: 1,436.19 | Thyroglobulin antibodies and TPO antibodies should definitely be checked as wel as the frees. (TPO is short for Thyroid Peroxidase Antibodies). I have had all of those symptoms, and also increased sweating. My TSH was in normal range but my antibodies were above 90 when they were first tested. |
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03-03-2008, 08:33 PM
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#12 (permalink)
| | Registered User
Join Date: Feb 2008 Location: Texas
Posts: 58
My Mood: Points: 275.43 Bank: 535.86 Total Points: 811.29 | To be honest I'm not even remotely sure what they tested, other than it was a blood draw. They did say one of my numbers was borderline, but nothing they feel they need to treat. Although after reading the sites listed here, I noticed that even if your levels fall within "normal" ranges, you can still have thyroid issue. Just like not everyone runs 98.6, not everyone feels right at the "normal" levels given for testing. Which was food for thought, I figured as soon as we have insurance again, I'll see a specialist.
I'd give you Karma for the replies but I'm all out already 
__________________ Belle - 30 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Phens - 26 Big D - 12 Miss Anne - 11 Be-zoo - 8 Dooch - 3 TTC #5 next cycle On: Adderall, Clonazapam, and Prozac To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
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03-04-2008, 01:57 AM
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#13 (permalink)
| | Registered User
Join Date: Mar 2008
Posts: 13
Points: 252.04 Bank: 0.00 Total Points: 252.04 | I would suggest that you get a copy of the lab reports for your own records and start keeping a book or file of this stuff for your own reference. My doctor suggested that to me some time ago and I've been thankful to be able to look back and see trends, etc. Even if you didn't get one right away from them you can ask them to make a copy of it and mail it to you or get one the next time you're in the office.
I really think we need to be our own advocate since not all doctors are informed or as concerned as we need them to be.
Take care,
Elaine |
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03-05-2008, 01:24 AM
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#14 (permalink)
| | Registered User
Join Date: Feb 2008 Location: Texas
Posts: 58
My Mood: Points: 275.43 Bank: 535.86 Total Points: 811.29 | I am learning this as time goes on. I am also learning that many doctors let you call your own diagnosis and after all the reading I've done, hopefully the new doctor I find will listen to me as well.
__________________ Belle - 30 To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Phens - 26 Big D - 12 Miss Anne - 11 Be-zoo - 8 Dooch - 3 TTC #5 next cycle On: Adderall, Clonazapam, and Prozac To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.
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06-17-2008, 05:58 PM
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#15 (permalink)
| | Registered User
Join Date: May 2008 Location: Henderson, KY
Posts: 19
My Mood: Points: 435.82 Bank: 0.00 Total Points: 435.82 | They should also have you do a 24 hour urine collection to measure the anti-thyroid antibodies (thyroid peroxidase [TPO] and antithyroglobulin Ab) That will help in dx hypothyroidism and the hishimoto's thyroiditis. |
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