MEH, this is super frustrating. I had my thyroid removed in June and my numbers are still high (TSH was 14, bloodwork done last week), but at least they are improving (were around 28 in Dec). I talked to my doc and she said that because I have lymphocyctic colitis, my body might not be absorbing all the synthroid, so she upped my meds again to 250 (so now i have two pills to take instead of one). She also added Actos to my pill list, because my nonfasting glucose levels were high (158). She also actually said to me, wow you have a lot of problems for someone so young. Thanks lady, like i needed that pointed out, but she also said i looked a lot better and am down 10 pounds sine the last time i saw her.
Now i get to see my gastro this friday about what to do about my colitis, he has taken the wait and see approach for the last month and guess what, it didnt go away magically (keep in mind i have had diarrhea, nausea and pain in my side for two years now). Its just frustrating. Thanks for listening
I know how frustrating it can be. My thyroid levels are still off and now I am on the 250mcg as well. I'm not happy about having to pay for 2 prescriptions and the smaller dose I have to buy in a 3 month supply. I'm hoping that once it is regular I will start to feel better. I can't live with the constant fatigue. Hang in there, you are not alone!
__________________ DH and I Married since 11/01
Fluffy cyster, 2000mg Met, 300mcg Synthroid
TTC #1 @ 30
6/09 Clomid 50mg
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
A couple of years? oh crap that sucks. im already off the actos, i had horrible side effects yesterday (jitteriness, vomitting, inability to concentrate, hot flashes), called my doc and she took me off the actos, although im pretty positive this same thing happen the last time they upped my synthroid.
You should be aware that some types of synthroid have gluten in them and so are not recommended for someone who has colitis. You have to be careful about where you purchase it from. You may have to go to a compounding pharmacy.
Kind regards
Thyroidlady
aka Marianna
according to their online ingrediant list, synthroid uses cornstarch. what do you mean by different types of synthroid? synthroid is the name brand that i take.
according to their online ingrediant list, synthroid uses cornstarch. what do you mean by different types of synthroid? synthroid is the name brand that i take.
It is good that you use the Synthroid brand because they use cornstarch, but the other ingredient that might make you have digestion trouble is lactose, especially if you are lactose intolerant which some people are. It depends what causes the colitis. If the pill tastes slightly sweet that could be lactose.
Kind Regards
Thyroidlady
I have been on levoxyl for 4 years now and mine still fluctuates- It was at a 9.52 in january and .045 in february and I have not changed doses in 2 years nor have I had my thyroid removed... Just hang in there- it's always frustrating when your body isn't functioning the way you want it to, but it will get worked out. I know when I had a steady TSH it took about 6 months from my diagnosis to get that steady.
__________________
Jamie (25) & DH Mike (26) To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts. Married 12.21.06
I can comiserate with you on the thyroid side. It can take a while to get your levels regulated so you feel good. It can take 6 weeks or years. And being checked regularly is important to stay on top of thyroid levels and possible changes in your dose. I started at 25 mcg when I was first dx as hypo. I never felt quite right, but my bloodwork said I should be feeling fine. I didn't know to push and ask questions at the time; I honestly didn't know that I could feel better. Since I had my thyroid removed I've been on so many different doses I can't count...but it's all part of medication magagement. I started at 275 and gradually went down, then back up. I am at a happy 212 right now. I see my endocrinologist every 3 months for check-ups and medication management...mine is pretty important to stay on top of since I had thyroid cancer.
Hang in there, you WILL feel better once your medication is at the right dose!
Cynthia
__________________ Proud Marine Wife To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
Proud Mom of DS (3 yrs) born in Korea AND
DS2 (17 mo) waiting for us in Korea! (traveling June 10!!)
Thyroid Cancer Survivor since 09 April 2004
To view links or images in signatures your post count must be 0 or greater. You currently have 0 posts.
If you are going through hell, keep going.
~Winston Churchill
venting, TSH still high 
ingredients that cause colitis 
