I am really annoyed that nobody told me about PCOS. I think the UK is seriously lacking in information, why are we so ignorant to this problem? Is there anything we can do to inform people of PCOS?
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Thanks for the replys girls. I think I will get involved with Verity, raise some money perhaps. Not only did I not know what PCOS was but neither did my doctor, I asked him a bunch of questions and he just couldn't answer! Its mad that all I was told was go on the pill when I was 15, never told that it could be masking anything. I would never of know I had PCOS if I hadn't come off the pill. I do have a gyne now and he is great, only problem now is it takes months to get an appointment. A very slow process.
So are you all having to educate your families and friends about PCOS?
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id actually knew wat PCOS ws wen i was DX!! I feel like the only person!! Id seen it in magazines alot and always thought i had it but then thought 'nah that wouldnt happen to me'... well it did!! It explains alot though!! And it didnt really stop me being shocked at the whole idea of it!! Im on a mission to get it out there though... Iv made a FB group about it... I hope i can help people get diagnosed younger... I was 18 but had the symptoms since i was 12!! [well about 10 if you count hair loss] id love to set up a charity or something...
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♥ Janine (20) Ash (23) ♥
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Well i think there should be more media and stuff on PCOS , i mean i was 10 when i got DX so that was great but did not get no help because pedis did not know what to do for me!
I would not mind doing a pcos talk , i am going to think of that maybe at a community center do a big talk on it so people understand it and are aware of it!
Jess x
I knew about it well before being diagnosed but had to fight my GP for getting tested and a diagnosis. Then i saw a different one and he knew quite a lot, although from this website i could comfortably say i am better informed than my GP in that sense.
It does need to be put out there more, but because of the symptoms being embarrassing people just don't seem to want to talk about it.
I couldn't imagine getting up in front of a lot of people and talking about the fact that I'm hairier than some men!
Wee Rant 
