Wee Rant

flowerpower27 · 03-27-2008, 05:17 AM

I am really annoyed that nobody told me about PCOS. I think the UK is seriously lacking in information, why are we so ignorant to this problem? Is there anything we can do to inform people of PCOS?

sarah jane parr · 03-27-2008, 05:38 AM

I know what you mean, i hadn't even heard of PCOS until i was diagnosed with it back in 2006!

KatCarney · 03-27-2008, 09:09 AM

The UK PCOS Oganization is Verity. You might want to get involved with them. Next month, they're having a big conference. PCOS Conference in London - 26 April 08 (Verity thing...)

Eva37 · 03-27-2008, 09:50 AM

i know what you mean! Ive never heard of pcos, either until i got dx.
eva

LaraSelan · 03-27-2008, 10:27 AM

Or me - and to be honest, the first time it was mentioned the woman doing my scan just said 'oh, you've got PCOS - no more puddings for you'

And that was it!!

Since I went back to my GP and got a really good consultant, I felt so much happier, informed and in control.

sarah jane parr · 03-27-2008, 11:01 AM

What a very unsympathetic woman doing your scan!!

flowerpower27 · 03-28-2008, 10:20 AM

Thanks for the replys girls. I think I will get involved with Verity, raise some money perhaps. Not only did I not know what PCOS was but neither did my doctor, I asked him a bunch of questions and he just couldn't answer! Its mad that all I was told was go on the pill when I was 15, never told that it could be masking anything. I would never of know I had PCOS if I hadn't come off the pill. I do have a gyne now and he is great, only problem now is it takes months to get an appointment. A very slow process.
So are you all having to educate your families and friends about PCOS?

sarah jane parr · 03-28-2008, 12:58 PM

Well for me i am trying to give as much info to my family as possible, i think they are finally understanding it!

Eva37 · 03-28-2008, 01:39 PM

this website is great for explaining things. Ive also got a lot of pcos book - probably about 8 by now

eva

sarah jane parr · 03-28-2008, 01:42 PM

I showed my dh, mum, dad and my sisters this website and they find it very helpful as it helps them understand about PCOS.

Sarah Louise · 04-01-2008, 06:02 AM

PCOS is such a growing problem at the moment you would think that there would be specialised clinics to help women like ourselves ??

neen4ash · 05-03-2008, 11:05 AM

id actually knew wat PCOS ws wen i was DX!! I feel like the only person!! Id seen it in magazines alot and always thought i had it but then thought 'nah that wouldnt happen to me'... well it did!! It explains alot though!! And it didnt really stop me being shocked at the whole idea of it!! Im on a mission to get it out there though... Iv made a FB group about it... I hope i can help people get diagnosed younger... I was 18 but had the symptoms since i was 12!! [well about 10 if you count hair loss] id love to set up a charity or something...

lazybones · 05-04-2008, 05:16 PM

Well i think there should be more media and stuff on PCOS , i mean i was 10 when i got DX so that was great but did not get no help because pedis did not know what to do for me!
I would not mind doing a pcos talk , i am going to think of that maybe at a community center do a big talk on it so people understand it and are aware of it!
Jess x

03-27-2008, 05:17 AM	#1 (permalink)
flowerpower27 I love X-Files Join Date: Feb 2008 Location: Glasgow Posts: 20 My Mood: Points: 1,275.85 Bank: 0.00 Total Points: 1,275.85 Donate	Wee Rant I am really annoyed that nobody told me about PCOS. I think the UK is seriously lacking in information, why are we so ignorant to this problem? Is there anything we can do to inform people of PCOS? __________________ Heather To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Me-28 DH-29 1st round Clomid 50mg (CD5-9) Metformin 1500mg Folic Acid

03-27-2008, 09:09 AM	#3 (permalink)
KatCarney SoulCyster #1 Join Date: Nov 2000 Location: Los Angeles, CA Posts: 16,797 My Mood: MyEbay : Points: 1,166,498.95 Bank: 0.00 Total Points: 1,166,498.95 Donate	The UK PCOS Oganization is Verity. You might want to get involved with them. Next month, they're having a big conference. PCOS Conference in London - 26 April 08 (Verity thing...) __________________ To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. COMING SOON - The New Soulcysters! - CLICK TO READ!! To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

03-27-2008, 09:50 AM	#4 (permalink)
Eva37 UK Mod Join Date: Mar 2004 Location: South Wales Posts: 12,572 My Mood: Points: 21,608.97 Bank: 1,041,115.92 Total Points: 1,062,724.89 Donate	i know what you mean! Ive never heard of pcos, either until i got dx. eva __________________ PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Mirena iud, Colpermin multi vits, Me - 41, hubby 36 son 11. Married 14 years She is buffeted by the wind, but she does not sink. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

03-28-2008, 10:20 AM	#7 (permalink)
flowerpower27 I love X-Files Join Date: Feb 2008 Location: Glasgow Posts: 20 My Mood: Points: 1,275.85 Bank: 0.00 Total Points: 1,275.85 Donate	Thanks for the replys girls. I think I will get involved with Verity, raise some money perhaps. Not only did I not know what PCOS was but neither did my doctor, I asked him a bunch of questions and he just couldn't answer! Its mad that all I was told was go on the pill when I was 15, never told that it could be masking anything. I would never of know I had PCOS if I hadn't come off the pill. I do have a gyne now and he is great, only problem now is it takes months to get an appointment. A very slow process. So are you all having to educate your families and friends about PCOS? __________________ Heather To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Me-28 DH-29 1st round Clomid 50mg (CD5-9) Metformin 1500mg Folic Acid

03-28-2008, 01:39 PM	#9 (permalink)
Eva37 UK Mod Join Date: Mar 2004 Location: South Wales Posts: 12,572 My Mood: Points: 21,608.97 Bank: 1,041,115.92 Total Points: 1,062,724.89 Donate	this website is great for explaining things. Ive also got a lot of pcos book - probably about 8 by now eva __________________ PCOS, LOCAH, Lichen Planus, IBS, HS,alopecia - raised bp/ cholesteral. Wheat and dairy intollerance Meds: Spiro, Bendrofluazide, Amlodopine, Simvastatin, Met, Prednisolone, Mirena iud, Colpermin multi vits, Me - 41, hubby 36 son 11. Married 14 years She is buffeted by the wind, but she does not sink. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

03-27-2008, 05:38 AM	#2 (permalink)
sarah jane parr Registered User Join Date: Jun 2007 Location: Dersingham, Norfolk, UK Posts: 537 My Mood: Points: 2,306.96 Bank: 2,623.35 Total Points: 4,930.31 Donate	I know what you mean, i hadn't even heard of PCOS until i was diagnosed with it back in 2006!

03-27-2008, 10:27 AM	#5 (permalink)
LaraSelan Registered User Join Date: Feb 2008 Location: London, UK Posts: 52 My Mood: Points: 1,109.22 Bank: 0.00 Total Points: 1,109.22 Donate	Or me - and to be honest, the first time it was mentioned the woman doing my scan just said 'oh, you've got PCOS - no more puddings for you' And that was it!! Since I went back to my GP and got a really good consultant, I felt so much happier, informed and in control.

03-27-2008, 11:01 AM	#6 (permalink)
sarah jane parr Registered User Join Date: Jun 2007 Location: Dersingham, Norfolk, UK Posts: 537 My Mood: Points: 2,306.96 Bank: 2,623.35 Total Points: 4,930.31 Donate	What a very unsympathetic woman doing your scan!!

03-28-2008, 12:58 PM	#8 (permalink)
sarah jane parr Registered User Join Date: Jun 2007 Location: Dersingham, Norfolk, UK Posts: 537 My Mood: Points: 2,306.96 Bank: 2,623.35 Total Points: 4,930.31 Donate	Well for me i am trying to give as much info to my family as possible, i think they are finally understanding it!

03-28-2008, 01:42 PM	#10 (permalink)
sarah jane parr Registered User Join Date: Jun 2007 Location: Dersingham, Norfolk, UK Posts: 537 My Mood: Points: 2,306.96 Bank: 2,623.35 Total Points: 4,930.31 Donate	I showed my dh, mum, dad and my sisters this website and they find it very helpful as it helps them understand about PCOS.

04-01-2008, 06:02 AM	#11 (permalink)
Sarah Louise Cheese Lover Join Date: Sep 2006 Location: South Wales, UK Posts: 1,262 My Mood: Points: 37.00 Bank: 159,080.95 Total Points: 159,117.95 Donate	PCOS is such a growing problem at the moment you would think that there would be specialised clinics to help women like ourselves ?? __________________ To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. Come And Chat Everyone Welcome !! To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

05-03-2008, 11:05 AM	#12 (permalink)
neen4ash losing hope Join Date: Apr 2008 Location: Leicester, UK Posts: 112 My Mood: Points: 603.21 Bank: 110.41 Total Points: 713.61 Donate	id actually knew wat PCOS ws wen i was DX!! I feel like the only person!! Id seen it in magazines alot and always thought i had it but then thought 'nah that wouldnt happen to me'... well it did!! It explains alot though!! And it didnt really stop me being shocked at the whole idea of it!! Im on a mission to get it out there though... Iv made a FB group about it... I hope i can help people get diagnosed younger... I was 18 but had the symptoms since i was 12!! [well about 10 if you count hair loss] id love to set up a charity or something... __________________ ♥ Janine (18) Ash (22) ♥ TTC Baby #1 1st Round Of Clomid 50mg - 13/04/08 - BFN - No O - Level 17 2nd Round Of Clomid 50mg - 09/05/08 - BFN - Might aswell put this now as Ive been informed I wont O on 50mg Im ment to be on 100mg but Dr didnt tell me. I HATE THE NHS To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts. x.x.x.x.xBaby Dust To You Allx.x.x.x.x To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

05-04-2008, 05:16 PM	#13 (permalink)
lazybones Registered User Join Date: Apr 2008 Posts: 97 Points: 2,927.73 Bank: 0.00 Total Points: 2,927.73 Donate	Well i think there should be more media and stuff on PCOS , i mean i was 10 when i got DX so that was great but did not get no help because pedis did not know what to do for me! I would not mind doing a pcos talk , i am going to think of that maybe at a community center do a big talk on it so people understand it and are aware of it! Jess x __________________ Formally known as junior_j 16 years old pcos for 6 years , was diagnosed at 10 Have 5 weeks left till i officially leave school Dieting to become more healthy and happier with my self image Medical conditions-Pcos , ibs , asthma , Treatments - Meberverine , blue,green,brown inhaler and pain killers.. Love my cysters xxxxxxx To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.

05-05-2008, 03:58 PM	#14 (permalink)
chantelley guitar hero loving cyster Join Date: Aug 2007 Location: Hull UK Posts: 219 My Mood: Points: 71.33 Bank: 28,658.36 Total Points: 28,729.69 Donate