 What about a NZ PCOS support foundation???
G’day Kiwi gals
I’m a little bit peeved at this…
Has anyone seen those endometriosis ads on TV? I’m sure it wouldn’t have hurt the powers that be to shove something on there about PCOS, as some of the symptoms are similar – and there is really nothing for kiwi women who have it.
I’m undergoing tests for possible Endometriosis, and have been in contact with the Endometriosis foundation, who just sent me out this awesome pack of information.
In it there is all sorts of informative pamphlets, newsletters, subscription information (where you can join nationally and in your local area), sheets of questions to ask your doctor, and information on upcoming seminars. The foundation also has a website, an 0800 number, and email and fax contacts. And if you subscribe to the foundation you receive regular newsletters, contacts for people who also have endo for support purposes, and information on support meetings, and seminars that are held very regularly.
The reason why I’m peed off at this is because I self diagnosed myself with PCOS from an article out of Australian Cosmopolitan. This is despite so many warning signs that my GP knew about, and yet she never picked up that I could have this. Once I read the article I made an appointment straight away with my gyno who has done so many tests, and referred me to so many other doctors that it is unbelievable. However, since PCOS was not picked up before, the consequences for me are long term – with issues such as diabetes, severe anemia, and a horrible weight problem which could have been avoided much sooner.
Once I was diagnosed with PCOS, I was left in limbo. Thank god I found this website, as it has been such an invaluable wealth of information and a fantastic support network - more than I could have hoped for.
However, PCOS in my opinion is just as, or perhaps more serious than Endometriosis in some aspects, and it is disgusting that many women like ourselves can’t get the support that we need. We all know how serious, and heartbreaking PCOS complications can be, and just imagine how many women could get the help they need before the sh!t hits the fan?
Is there anyone out there who shares similar opinions? And what do you think should be done about it?
I don’t know if approaching the Ministry of Health is a possibility??? | 
