What to do?? (lil long)

ladynred1920 · 07-07-2008, 08:19 AM

Okay, I have not been diagnosed with hypothyroidism or anything like that, but I think I may have it. Of all the research that I have done, I seem to fit more than half of the symptoms that are listed with hypothyroidism. Each time my TSH levels have been tested, I have always been medicated (BCPs, Clomid, progesterone, etc).

One of the main reasons why I was wondering about getting a diagnosis is because I have such irregular periods it isn't even funny. I have been having 2-3 periods a month now for almost a decade. I have been to numerous doctors and have taken many medications with no relief. I think I have been on every BCP known to man, and the only thing they made me do was bleed even more.

I had a D&C done last year only to find out that there was nothing wrong. I had 3 weeks of no period, and then I went right back to where I was before, bleeding all the time. They told me it was hormone related, but then just kept trying different BCPs.

Along the way I decided that now (September 2007) was as good as time as any to try and get pregnant. We have been trying now for 8 months, and every time I have my progesterone taken they always tell me it is really low. I later found out through charting that without Clomid I don't even ovulate or anything.

But here is the catch, every time I have my tests done ... they always tell me I am normal. Okay, there is nothing normal about what I am going through. NONE! Every test they run, it comes back normal. I know there is something wrong and I know to go with my gut. I had a tumor once that had to do with my reproductive organs, and it took me a while to find a doctor that would listen to me and not tell me I was nuts (even then all my tests were normal).

So (after my long novel here), should I get off the Clomid for a while and insist that my endocrinologist look further into my thyroid possibly being the problem, or can I do this even though I am on Clomid?

I am just getting a little tired of being told that I am normal and yet I still feel like dodo.

Thank you for listening.

vicandla · 08-15-2008, 12:00 AM

Personally if you haven't had any panels on your thyroid ran I would ask my Dr to run them, I would ask for him to run TSH, Free T3, Free T4 and thyroid antibodies your bleeding sounds like it could be thyroid related and so does the Oing problem, have you taken your BBT at all, women who are Hypo have low Basel Body Temps that is how I found out orginally that I was hypo. also IF you think you could be hypo stop TTC until you get things fixed as it can cause miscarriage. Find a Dr that will listen to you!!!! Good Luck

groovy1 · 08-20-2008, 10:16 AM

Wish I could help , but unfortunately am in pretty much the same position.Sooooo frustrating being told you are in the normal range and yet you feel sooo crap!!!Good luck, hope you get some answers soon.I'm about to start charting temps have been using opk's but don't trust em with the pcos thing.Will be intrested to see my temps.Let us know how ur going and don't let the doc's fob u off find one who will listen.

LaBigGirl · 08-20-2008, 11:20 PM

Ladynred, try to get a photocopy of your test results from your dr. (whatever is most recent thyroid test). Sometimes different dr.s use different criteria to say if you do/do not have hypothyroidism. Range of "normal", esp. for the TSH number, has changed in the last few years, but some labs still use the old range.

It might also be good to get another opinion. Ideally a dr. will look at the whole picture, your blood tests AND how you feel. Your menstrual troubles have to be caused by SOMETHING (thyroid or not), so find a dr. who has the time and patience to dig around your history and discover what is going on. All it takes sometimes is a new pair of eyes.

I hope you have relief from your trouble very soon!

Black Lilly · 08-21-2008, 03:07 PM

Hi Lady in Red,

I am so sorry to hear that you are not feeling well. And, I am not surprised that the doctors have labeled you as fine. Honestly.

I don't have a clue as to what might be going on with you, but I have been in the same boat with you regarding no clear answers from medical community and complete frustration about not getting better.

Have you visited the forums for thyroid help? They are incredibly knowledgeable and might be able to answer some of your questions.... http://www.realthyroidhelp.com
I know it's hard to keep trying again and again to find the answers for yourself when the experts tell you that you are fine, but you are important, so keep it up! Best of luck to you. Hope you feel better.