What the heck now? ( This may be long)

LookingForHope16 · 02-01-2007, 03:25 AM

Alright girls -- here it is. Almost 2 years ago I was thought to have PCOS -- nothing done about it.

So I got refered to a different doctor and she done a good bit of blood work and even sent me for an ultrasound. I thought this was great!

Well I went back today to get the results from everything and well here is how all of that went --

ALL of my lab work was fine. How in the heck is that even right? Everything was PERFECT!

Well then she had to go and view my ultrasound and guess what it showed -- NOTHING. No cysts yet. Everything looked great.

So I guess your wondering why I am pissed and cried all day. My blood pressure had been high and my fasting blood sugar was 177. So now after I'm only 18 and never have I taken regular meds -- I'm on two. And I have to check my blood sugar fasting everyday and record it for three weeks and then return to see her. I'm soo confused. At least I was semi prepared. At first she was going to only give me the spiro and let me take that for 2 weeks and see if things changed and then she glanced back at my D-stick from last visit. She asked if it was fasting or not and I was like um yeah -- why? She was like oh well it's kinda high there. Have you ate today? I was like uuum no I have a lunch date with my mom after this. So she had them recheck it and it was 177. She was gonna give me provera to take for 5 days and then she was like oh well if you take the Spiro and Met for a little bit it's gonna give you AF.

So now here is the end -- Im' 18 (almost 19) I have fluid on my ankles, HTN, and high insulin levels. I asked her about another thing my other dr had dx me with. Hyperinsulinism. She said that it's what you experience before you have an issue with hyperglycemia. She told me ( and was being really nice about it) that dropping a few pounds would help. I'm working on that. Really working hard.

Girls -- I read here all the time at everything and have learned so much and now *I* feel soo stupid and so lost. What is the deal? Why me? I honestly sat in my car and cried for like 20 minutes before I could meet SO and mom for lunch. I feel like somewhere in the past I have done something and this is the cause of it and it's all my fault. I appologized to Amanda for all of this as I feel like a faliure. Does anyone have any answers?

If you've made it this far -- thanks for reading!!

(Note to Mods -- I'm not even sure if this is posted in the right place. I looked around at a lot of sections and this seemed right. You can move it if you need to. I understand.)

annarebekah · 02-01-2007, 09:33 PM

Sorry you are going through so much...I will be praying for you!

sinnie · 02-01-2007, 10:59 PM

Did you have these tests or ultrasounds before? You might want to seek a second oppinion. At the least, I would think you are pre-diabetic with the fluid in the ankles and high blood sugar like that.

I've had to go through several doctors to get the combination I got now. First on my ultrasound showed cysts and the doctor kept going "WOW, I've never seen them THAT BIG! " talking about the cysts and how swollen my ovaries were. Then MY doctor comes in and says "Yep, your ovaries look GREAT" and I was like, "what the heck did that other doctor mean by that then?!"

So I left him after that and went to one that was recommended on a local PCOS site, as well as got referred to what is supposed to be the best endrocronologist in the state, which happens to be in my home town thankfully, and now I finally get answers I feel comfortable with and they actually talk to me and care.

So again, I'd look locally for a doctor experienced with PCOS and get a second opionion. If you were diagnosed with it before, you might just be in "remission" or it might have been a mess up at some lab, or faulty equipment or doctors.

sinnie · 02-01-2007, 11:12 PM

In addition, my first gyno thought I was full of fibroid cysts and I went to the new doctor and they found none, just huge cysts on the ovaries and they were swelled up to 3 times the size because of it. Plus not all women with PCOS have cysts either.

LookingForHope16 · 02-02-2007, 03:16 AM

she is experienced in PCOS. She said that I was on the way to it but the cyst weren't there yet. She said I had everything else.

I have hyperinsulinism.

sinnie · 02-02-2007, 05:37 PM

There is no "on the way to it"
Not everyone with PCOS HAS cysts. If you have all the blood results and other effects of it YOU DO have PCOS.

Try to get an appointment with a good endocronologist and tell them you have PCOS and need to start getting treatment for it.

junior_j · 02-02-2007, 05:42 PM

Aww ((hugs)) sorry you are feelin soo down pm if u want

Jess x

LookingForHope16 · 02-04-2007, 04:09 AM

well she went ahead and put me on met due to the Fasting Blood Sugar was 177.

I don't feel any better, but I am cramping really bad.

sinnie · 02-04-2007, 12:49 PM

met will do that to you. Hope you feel better. You might need to change your eating habits to ease the effects of met.

Eva37 · 02-04-2007, 01:19 PM

all the best for the met
eva