What's your pain like?

annabelle8101 · 06-15-2008, 01:20 AM

I've just read a bit on the endometriosis page here and I'm very curious about what kind of pain you all have.

I'm about to have a colonoscopy because sometimes I have pain before or during a bowel movement. It's in the lower right side of my abdomen - really almost near my hip. It's a stabbing or pulsating type pain. It is usually associated with bleeding with the bowel movement. Occasionally I'll have a similar pain on the left side. The gastro says it's probably nothing but wants to err on the side of caution.

Thanks in advance for sharing your information

dillydaydreams · 06-16-2008, 09:03 PM

Hi,
I do have endometriosis and PCOS. I used to suffer excruciating pain but have a friend who has endometriosis and never noticed pain, it was the fertility issue that discovered se had severe endometriosis, so the pain does not reflect the grade of the endometriosis if you know what I'm saying.
My mom had endometriosis and had full hysterectomy at the age of 36, she also had bad pain but her symptoms were way worse than mine.
Anyway! Sorry if I have got on a bit but I used to go to a board www.endo.co.uk
Not sure if it is still there as it has been a long time, my endometriosis has eased off after years of treatment, but, now that my ovaries are active again back comes PCOS.
In my personal experience endometriosis was just severe pain.
PCOS has lots of symptoms, I am text book PCOS although not too overweight but if I didn't visit dietician on a regular basis I'd say I'd be big.
Hope this has helped

Kalyn · 06-18-2008, 04:26 AM

Mine was like period cramps times 10. Mainly on my right side. To use the bathroom (#1 or #2) was a painful and long process, they even at one point checked me for kidney stones cause it hurt so bad to pee. I wore sweat pants for months because the pain was so bad, anything tight around my belly would just about kill me. I remember telling my mom that if having a child was more painful than what I was going through I would forget about having kids. I got into a habit of rocking myself to try and ease the pain....some people probably thought I was weird. Sometimes the pain would shoot down my thighs and up my back.

I have taken 90 days of Lupron, and honestly I think it helped me. I only get pain when I do a lot of heavy lifting or if I am on my feet for a long period of time and sometimes when I have a bowel movement. Other than that, no pain and it is such a relief to me. The only problem is, I can be pain free anywhere from a few months to a few years. My doctor said it is different for everyone.

dillydaydreams · 06-18-2008, 06:23 PM

Hi I forgot to mention before my period I used to get pain down my left leg don't know if it is the endometriosis or pcos that caused that, also during every period I bleed out my back passage also (TMI) sorry.....
I shut down my ovaries for a few years which helped big time with the pain. A laperoscopy is the only way really to diagnose endometriosis as far as I know.

alaskaflygirl · 06-24-2008, 05:01 AM

Quote:

Originally Posted by annabelle8101

It's in the lower right side of my abdomen - really almost near my hip. It's a stabbing or pulsating type pain. It is usually associated with bleeding with the bowel movement.

Obviously, a diagnosis can't be made because of shared symptoms, but what you described is exactly what I experienced, too.

I was first diagnosed with endo in 2000. I had another surgery three weeks ago, and my endo had progressed to stage II. I had endometriosis all over my pelvic and abdominal walls, uterus, ovaries, etc. Naturally, the pain was exponentially worse during my period.

On the bright side, I also had ovarian drilling (for the PCOS), and got my first natural period in 8 years today! And guess what: I am in very minimal pain. So surgery is indeed a viable option for treating endometriosis and obtaining pain relief. Unfortunately, there is no cure, and it does have a tendency to grow back. But the amount of relief I've experienced in the past few days made it all worth it.

I hope you get answers for your pain, but I sure hope you're not diagnosed with endometriosis!

bastet6 · 06-29-2008, 01:18 PM

Hello!

I was dx with endo in 2007 (pcos in 2000). I had severe pain in my uterus, ovaries, and coccyx. It was unbearable, like 20 times worse than period cramps. I did a 6 month round of Lupron and (knock on wood) have not had the pain since. The last shot was in December.

bkimes1977 · 07-03-2008, 08:33 PM

I have endo and PCOS. My pain is really bad in my low back. I have urinating issues to. I have not taken any meds for the endo according to my physician the endo is not that bad.

annabelle8101 · 07-05-2008, 11:10 PM

Thanks for your feedback, everyone. I was hoping to discuss this with my doctor on Thursday, but he had to run off to do a c-section, and no sooner was he back, but he had another woman ready to deliver. I will discuss it with him in 3 months when I follow up again.

monicamichelle76 · 07-07-2008, 07:50 PM

I was finally diagnosed with endo in Feb have been dx with PCOS since 1996. My old doc kept telling me I didnt have endo even after lapo. well when my new doc went in i was dx with advanced stage 4 endo which is the worse and he said i was on the road to ovarian cancer. my pain was unbearable and he said he didnt know how i was even walking around.

the sad thing is i felt good for the first month and now i feel like ive been hit by a mac truck - my period is coming now for the first time in my life but its painful. I have developed a spastic colon, lower back pain, tender breast ,etc

I go back to my doctor on Thursday so we will see what steps are next.