Whats Next for Me..doctors dont know do you?/

MikesHAPPYwife · 10-18-2005, 04:52 AM

Hello ladies!!!
I am a woman who is sick of going to the doctor and paying the bills for that matter. I have had 2 doctors tell me they "think" i have PCOS and finally have years of wondering why I am fat, hairy, and have period "issues" I am told why by a doctor. She told me why but never said whats next or how to deal with issues. She actually made PCOS sound like nothing. Well, after reading and reading and yes reading some more I could scream that one thinks this is a big deal. Me and my wonderful husband have been married now for a year and a half. We are off birth control (it didnt work for me any way), and I am focusing on loosing weight. I have read on some sites this helps your chances of getting pregnant. Me and my husband both talked about adoption before getting married and would like to adopt one day but now our focus is on my getting healthy. The doctor put me on metformin and have been taking it since July, but its only 1000..seems like everyone else is at 1500 should I complain. Since taking this little pill i have my period..however..i have LOTS like randomly all the time. This doesnt help the sex life any. Next thing that i love is the hair groweth. I have had lasor on my chin (neck) and now have some hair growing but nothing like before. I am waiting to get my 2nd session done. However, I still have a mustache and side burns but who can afford to lasor all of it? Any advice on how to fix this. I use hair removal creams on my mustache and try bleaching the side burns but that doesnt work so well. My feet, stomach, and sometimes breast have hair but who cares we have clothes to cover that

Next, thing is....Does loosing weight really work? if not, what helps? Is there fertility drugs that dont risk the chances of multiples? Is it true that most pregnancy end in miscarriages with pcos girls? Does any one else think about this more than once a day, but hate to bring it up to anyone? My hubby who is loving and supportive takes the whole dont worry it will work out approach... I wish one other person will just get mad and yell at PCOS with me..that would feel great

Okay,, let me stop typing and start reading some more. BTW..i must tell someone I have lost 25 lbs, since told in mid. July about PCOS..Goal is 199 by my b-day 12/12

Dave&Blondie · 10-18-2005, 06:03 AM

First of all...congrats on the weight loss! That is awesome!! I too have read a few things about weight loss and the increase of chances for pregnancy and less PCOS issues. I have to say that I tried it...and things didn't go away. I could finally after years and years of explaining my PCOS and having docs just flat out say "get healthy" stand in an office 125 pounds lighter with the SAME things I had delt with before the loss and say "HA! See its NOT the weight!" LOL

We all here understand the frustrations you are feeling! PCOS does seem to be like any other major chronic illness, where it just seems to define you. The trouble with overcoming that is to NOT let it define you. YOU DO have control of that. Its such a struggle, though. I have times that I call "Cancer Weeks" where it seems like everything I do or say or people I talk too, every topic of conversation comes back to Cancer. I would rather it just go away but that doesn't seem to happen. I just make sure it doesn't define me. My ENT who did my surgery said to me...(at 21 mind you) "EVEN YOU can get a COLD" and after I let that sink in, I can't tell you how it helped me deal with my cancer. It got my head out of every small and minute detail of my life with Cancer. Lastly, I will say...and I have heard others say this as well.... helping others is the best way to get your head out of something overwhelming you! Find a Big Sister program, check into your church ministries, go serve a meal at the Rescue Mission, become a sponsor for a troubled teen, get involved with Breast Cancer Awareness.....you get the picture! Its hard to get caught up in yourself when you are busy opening your heart to help someone else.

As far as infertility, that is something you have to research for yourself. It is quite difficult for most women with PCOS to get pregnant but...if God wants you to have children He will provide a way. I would LOVE to adopt. I also have my best friend who says she will carry a baby for me. (Now THAT is friendship) I have talked it over with David and we are just in the process of deciding what is best for us. I dont and can't put my body through a bunch of meds and shots and all the stuff PCOSr's do. But if you truly feel the need to have a child that is yours and has your DNA then you make those sacrifices.

Being here is a great place to start. You won't feel alone and you will be able to "arm" yourself with the knowledge of the "what's next" ideas. I have been dealing with this for 20 years now....just lately its taking on new meaning since I have found the man I will spend the rest of my life with! It will come and go...but hanging around here will greatly help. Also, knowledge is power. Don't ever feel intimidated to ask the tough questions to your docs. Most will commend you and most will help you answer any or all questions you have. If you are not satisfied with the answer....there is always another doc around the corner! LOL

Hope some of this helps! I will scream right next to you, my cyster!

We have all been there! God Bless you on your journey!

Jashobeam · 10-18-2005, 04:28 PM

Welcome to SC!

MikesHAPPYwife · 10-18-2005, 05:29 PM

Thank you all for listening to me. I will have to say Ido find myself activity in the community and that does help out ALOT!! Its just those nights when my hubby is at work and I am watching t.v. and seeing a child being born or when i check my email and get the picture of new neice. Its thats moments when you wonder will it happen to me. I am definately looking towards God's grace and greatful this has come along to improve my relationship with God. I do think that Adoption will come before some of those other treatment options just seems to be to much. I use to work at a childrens home and know that there are so many kids over the age of 5 that are stuck in the system that no one wants. Just think what a difference us pcos woman could be for those kids.

Jashobeam · 10-18-2005, 06:09 PM

Quote:

Originally Posted by MikesHAPPYwife

Thank you all for listening to me. I will have to say Ido find myself activity in the community and that does help out ALOT!! Its just those nights when my hubby is at work and I am watching t.v. and seeing a child being born or when i check my email and get the picture of new neice. Its thats moments when you wonder will it happen to me. I am definately looking towards God's grace and greatful this has come along to improve my relationship with God. I do think that Adoption will come before some of those other treatment options just seems to be to much. I use to work at a childrens home and know that there are so many kids over the age of 5 that are stuck in the system that no one wants. Just think what a difference us pcos woman could be for those kids.

I would encourage you to check out the Faith and Adoption boards. There are some very encouraging stories on those boards!

Mustard Seed · 10-18-2005, 06:46 PM

Welcome to SC, Laura! I hope you are able to find a dr that will listen to you and not just give you a dx like it's not big deal. There's a heading on this website all about finding doctors in your area, so maybe some of the ladies there would be able to help. The only fertility drug I know much about is clomid, and that does not increase the chance of multiples. And although I've read on this website and many others that m/c are more apt to happen for women with pcos (and even though I've been through one myself), my previous dr and the RE I was seeing both do not agree with this statement. They didn't give me a reason why they didn't believe it, just that they didn't.

Quote:

Its hard to get caught up in yourself when you are busy opening your heart to help someone else...Also, knowledge is power. Don't ever feel intimidated to ask the tough questions to your docs. Most will commend you and most will help you answer any or all questions you have. If you are not satisfied with the answer....there is always another doc around the corner!

I have to second just about all that Shari said, but these parts were the parts I agreed with the most. Good job on losing 25 lbs. since July, Laura! That's amazing! You have found a great website to vent your frustrations, and get your questions answered. Glad you have joined!

CathyWood · 10-18-2005, 07:02 PM

Welcome to SC. Glad you are here. See you around.