Who of us here has endometriosis too? - Page 2

indiana_troll · 07-23-2003, 08:06 PM

OMG!! I couldn't imagine insurance not paying for endometriosis treatment. Mine was all paid for. Thank goodness. There is no way I could have had all the treatments and paid for it out of my pocket. When will insurance companies ever get it out of their heads that if a woman is undergoing a procedure down there that it isn't always for infertility issues?

Patty

Pattyannruss · 07-23-2003, 08:42 PM

Brenda,
Oh Ya! (Warning, possible TMI coming)

I have only been able to ware tampons prob 5 times in my life.(approx)Always waiting many years inbetween out of fear of pain.

As a teen, I crawled to the school bathroon in severe cramps and then spent 5 mins trying to remove it! Oh how I cried in PAIN.

On other occasions I bled so much, the clots would push the darn thing out. At least with pads I don't have to touch any yuk.
My Dr suggested last year to ware them due to all the UTI's I was having. But I couldn't stand the mess that came with them.
I still had to wear a pad because of the amount of loss.
So it was more of a hassle and mess to use them.
So I went back to pads.(Always worked best for me)

Suzi,

Your Dr is a ditz!
This is why I don't suggest a specialist DR (endo gyn)
Because, their field is mainly for fertility issues and most insurances do not cover it.(So many here at SC suggest one)
So most work you need done(even for fertility) can be done with out a specialist if that Dr is willing to work with you and use the correct terminology for the ins company.

Some women here are not getting proper treatment because they are going in for "fertility issues", they need to word it diferent and never use "TTC" or such until the have exausted all routes.

I a few that had a Lap done and it wasn't covered due to the Dr using TTC terms instead of normal "illness" issue terms.
So they had to pay out of pocket for something that should automatically be covered.

Good Luck,
patty

MustangChick · 07-27-2003, 05:06 AM

I was dxed with Endometriosis on my right Kidney and Urthera on the 15 by Lap/Hystroscope/D+C surgery/procedure (nearly 2 weeks ago)

ouch the tampon thing, it would hurt going in, cause when I was having a really bad periods it felt like it was hitting something when I would insert it, but after a few minutes it'd go away, I didn't think of it as a concern until i heard it was a symptom of what Endo patients go through on their periods. And I had the painful intercourse at the age of 17

still do now.

Emi · 07-27-2003, 11:43 AM

That was one of the things they found when they did my hysterectomy.

April_Bee · 07-28-2003, 03:53 AM

I was dx with stage I endo 11/02 when my dr did a lap/ovarian cyst removal.

I thought I was the ONLY one with the tampon problems!!! Not only did I have pain upon insertion, but the whole time it was in me. And I too have the dark brown gunk with all the clots. Yuk!

Other symptoms of endo I have are chronic pelvic pain, chronic back pain, painful intercourse, and fatigue.

My mom had stage 4 and had a hyst when she was 36. I had my first lap at 17 to check for endo, dr found no evidence of it then.

I never thought of PCOS and endo being linked before, if anyone has other research on this I would be interested in hearing about it.

Daracha · 08-06-2003, 03:11 AM

I have endometriosis as well.....though I feel very undereducated at present. After reading all the posts I realize my doc never mentioned any stage or anything...so, that's all I know is that I have it lol. It didn't look all that severe in the surgery pics, but the symtoms are killer and getting worse all the time. So, I dunno. About the tampon issue, I would go through spells where I could wear them and sometimes I couldn't. Until I had my daughter...after giving birth I have never been able to take the pain from wearing one. ANd I would have thought it would have been quite the opposite, but all my other symptoms have worsened since then as well. I just never even thought it could be from the endo. Good to know there may be a connection there.

Juliekaboolie · 08-06-2003, 07:32 PM

I was diagnosed with 'mild' endo in December 1996. I didn't know that pain/discomfort with tampons was sign! I have that and can only wear the really small/teen size ones because of discomfort. I've been thinking of going off my BCP (Yasmin) because I heard it aggravates insulin issues but have always been hesitant as I've heard it's best for endo. Not sure what to do about that... I'll probably go off them and see. Plus, I have moderate high blood pressure and I'm sure it's aggravated by the BCP's too.... hmmm.... any opinions??

Eva35 · 08-07-2003, 06:58 PM

Hi

Well, I'm not 'allowed' to be on bcp anymore , as it makes my bp too high. Sorry, can't remember how high - just that it set the alarms off!!

Eva

Astrolaura · 08-08-2003, 03:51 PM

Yup, that'd be me. I have endo, cysts and uterine polyps.

Hat trick for me.

Laura

Quote:

Originally posted by princess5
I was just wondering how many of us suffer with endometriosis too and whether it would be helpful for us to know who the others are so we can help/listen to each other?

HISIRISHGEM · 08-10-2003, 11:05 PM

ladies,

I'm alittle concerned because I KNOW I have it.....after several tries, my RE finally saw scar tissue through a PS. He told me that I should think about laproscopic surgery because my last surgery for gall bladder, the dr. found adhesions. RE says that adhesions bring a considerable amount of risk to the surgery.

DH and I are leaving the job we're at the first week of september and my insurance will be out. I'm trying to get the surgery before the end of august......I also had an interview as an executive secretary and can't afford to really miss the job due to the delay of surgery. I wish I could just get it this week.

my question is:
Did any of you have adhesions?

How long did it take you to recover and go home?

I am 5ft 2 weighing 220 are we all overweight or are most of you thin cysters??

I'm really biting my nails here. Everything is so close together.....and I don't want to die over this....so I'm a bit nervous. What are your thoughts on this??