Wilson's Syndome? Anyone diagnosed with it?

Lemonade Ladybug · 09-15-2006, 07:18 PM

My doc thinks I may have it...doing blood tests next week to confirm. Learning about it is like looking in a mirror...I can relate to it ALL.

Just curious what kind of treatment you were on/how long/did it make you feel normal...or any other fun facts.

It seems that most of the symptoms of Wilson's Syndrome and PCOS are the same.

Thanks for comments,
LL

earcmra · 09-15-2006, 09:20 PM

I used google to look for articles on Wilson's syndrome. I'd be a little wary of that diagnosis myself.

http://tinyurl.com/hc523

tameejean · 09-15-2006, 10:18 PM

I read about that too, a while back. I agree with earcmra, I'd be a little wary as well.

Lemonade Ladybug · 09-15-2006, 11:35 PM

Thanks...but no thanks.

I am working with probably the best female hormone doc in the country and I trust what he's seen in me and what he can do.

Mainstream docs don't acknowledge this syndrome or anything else they don't understand....hence forcing the rest of us to find doctors that actually DO have a clue.

Again...appreciate anyone's feedback that has been diagnosed and treated.

Thanks,
LL