I have been on Synthroid 137 for almost 4 weeks now and I'm not feeling any better. Just wondering if any one has wilson's syndrome or has and info on it. I'm going to start taking my temp daily but this morning it was the first time I took it and it was only 96.1. I'm so cold that I shack and I'm still having times where I have anxiety and depression. And I'm also having trouble sleeping at night even though I'm so tired during the day.
I just want my body back.. Any infor would be great. I feel so alone with this.
I have never heard of Wilson's Syndrome but I came to this forum to post about how cold I am! And my temp is usually very low when I take it... normally between 96.0-97.3. It's so bizarre. I know being hypo and having Hashi's, my normal body temp is on the lower end but I am so cold, especially my hands. Maybe I'm a vampire... ;-) I'm going to research Wilson's Syndrome.
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Intolerance to cold is very common in hypo .. your body may not be completely adjusted to the med's yet - even after having it 20 years, if my dosage changes we wait at least 6 weeks before we check.
I found a pretty good website for you if you haven't already checked it out
wilsonssyndrome (I can't post the whole url because i've not made enough post yet but just add the dot com) .. wasn't real sure about it until I started reading through it - might have some useful info! best wishes!
PS - sosilly- I'm like an icebox as well! oddly enough, my nose is always cold!
Intolerance to cold is very common in hypo .. your body may not be completely adjusted to the med's yet - even after having it 20 years, if my dosage changes we wait at least 6 weeks before we check.
I found a pretty good website for you if you haven't already checked it out
wilsonssyndrome (I can't post the whole url because i've not made enough post yet but just add the dot com) .. wasn't real sure about it until I started reading through it - might have some useful info! best wishes!
PS - sosilly- I'm like an icebox as well! oddly enough, my nose is always cold!
Mine too!! It is so bizarre. But the odd thing too is sometimes I will be so hot and everyone else will be cold... I'll take my temp and it's 97.0 or below. That's just wrong. LOL
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I have Wilson's syndrome, PCOS and hypothyroidism and was always freezing even when I lived in hot and humid Central Texas. I discovered that if I took my Synthroid really early in the morning when my alarm went off and I hit the snooze buttom that it metabolized better and I felt better. I also do not take any vitamins or supplements within four hours of taking the Synthroid and take Metformin at night at dinner instead of in the morning or at lunch. Since doing this routine, my TSH levels have gone down from 4.0 to .31 to .11. My doctor has reduced my Synthroid dose from 88 mcg to 75 mcg and I start 50 mcg tomorrow. I no longer have my hypothyroid symptoms (except hair loss from the PCOS), am no longer cold all the time, I've lost weight, feel more alert and less tired and have moist skin for the first time in four year. I used to take Synthroid at night per the instructions of my first endocrinologist in Austin and it just didn't work right.
Wilson's Syndrome is connected to T3 levels.
Darling, you have some serious issues with your thyroid.
Hang in there and I hope you will level off soon. I am thinking you are having a dump load of thyroid hormones raging through you since you changed meds.
Keep us posted. You are not alone!
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Wilson's syndrome 
