Besides my husband, so far I've only told my sister, mainly because I'm kind of torn about it. I feel like people should know, so that they better understand why I'm not losing weight or why I'm moody or why we haven't had kids yet. But yet there is a part of me that feels like it is a very personal thing and I don't want people to know and look at me differently because of it.
I told my family and my hubby's family as we are all close. My SIL also happens to have PCOS so it is a comfort to talk to her about the issues I am going through as she has gone through them as well... I think it really helped in the weeks after I was dx'd because if I was depressed or moody from the dx people would understand and didnt' think I was being that way for no reason...also it helped them to back off a few times when I didnt' feel like talking and sharing about it...
HTH
__________________ Married DH 6/06
TTC since 6/07
DX 1/14/09
5 furry kids, 1 chinchilla, 4 hamsters
Currently on:
1000mg Metformin/day
10mg Provera (7days/month)
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It's not something that I'm very private about, especially as I live in a very small town and got sick and tired of getting the "When are you going to have kids" question every time I bought groceries, went to the bank, paid my fuel bill, etc. etc. etc. So I told our close friends and family members and before long, most people knew (like I said, small town! "News" travels fast). I guess, for me, I found telling people was also a bit cathartic.
I think each person will deal with it differently though. If you are unsure about telling people, then hold off for a bit. It's easy to tell someone about it later, but if you jump into it and share before you're ready, it's impossible to un-tell it
My husband and I started trying to have a baby last year and of course we were excited so we told our families...Well, after several months of trying and a LOT of questions from family we decided to see a doctor. Because I wasn't having a period, he decided to start some bloodwork and Clomid. After bloodwork and ultrasounds I was diagnosed with PCOS. I am still taking the Clomid (just finished 3rd round), but it is not working.
I am sure my husband told his mother what is going on, but she has been so sensitive and hasn't brought it up to me at all. I have only told my mom and grandma, but they have told others in the family...how much detail?...I really don't know, but I think it has helped us. It gets tough after a while having everyone ask about why we are not pregnant yet. Also, my family is more careful about bringing up conversation about other pregnant family members...It's sort of a sensitive subject for me. I think everyone is more supportive and understanding, but if they were just left in the dark about all of this I'm sure we'd still be getting comments and questions about how long our baby making is taking.
I've told a lot of people. Friends, family, etc... I think the awareness should be out there. Plus, I feel like it lets them know that the reason for my facial hair, etc. isn't because I'm a freak of nature, it's related to a condition that I have. A lot of my cousins have PCOS but are not aware of it. They are not very educated on it so I try to make them aware as well that there are options and things they can do.
__________________
Kristina (27), Dustin (28)
& Ani Rose (6)
The Johnson Fam est 10/26/02
Two angel babies:
16wks 10/08 & 9wks 03/09
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I tell almost everyone. I hate having people judge me because they think I'm just fat and lazy and eat to much food expecially since I work at McDonald's. I'm not lazy, and I actaully tend to not eat enough....and as for my working where I do I bust my butt everyday there and don't eat anymore than anyone else actaully the skinny itty bitty ones eat a lot more than me.
I inform anyone if it comes up in convo. Just the other day one of my coworks asked me what was new with me how things going what not (I've been making lot of small changes since my relationship with my ex ended a few months ago) and when I said not much I work and sleep and then work some more but I did take off 2 1/2 more pounds she asked if I was dieting and I said no the meds for my PCOS are working and then had to do some explaining about it to her.
I've actually gotten to the piont I get tired of explaining it because its not a secret and I feel like I've already told everyone yet there is always someone else who doesn't know.
__________________ Holly~31
Gluc 1000mg, Zoloft 50mg, Multi Vit., & Fiber Chioce daily.
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I tell people if I feel the situtation calls for it. Most of my family members do know about whats going on with me. My DH doesn't really like to tell people even when he gets the "when are you going to have a baby" question for the millionth time! I feel like if people know whats going on with you and how much you are going through (emotionally and medically) then they will realize that you really want this baby and won't think that it was an accident when you all of a suddent get your BFP!
I used to be a very private person but found that it usually only resulted in me getting my feelings hurt so now I tell anyone if it comes up in conversation. I feel the more people hear about it, the better. More awareness is always a good thing.
__________________
Cindy (35) Ryan (35)
m/c 3/3/03 m/c 7/12/06
5th round clomid (100mg cd3-9) HCG, IUI...BFP 11/9/06 7-11-07 Katie Lou arrived via c-section at 3:04 pm 8lbs 1.5oz 20" long 11-21-08 Owen Lee arrived via c/s at 1:54pm 8lbs 1oz 20.5" long
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I tell people, it amazes me how many people are out there that have PCOS, and are not educated about it.
I just had someone tell me that their doctor told her she will have to have her uterus and ovaries removed by the time she is 30 because of PCOS, this girl is 17, and the doc told her to think about finding someone to have kids with very early if she wants kids.
OMG - how does a doc tell someone that?!
I told her BS - there are so many successes with PCOS - and to perhaps get a second opinion.
I also like to share my story with people just to prove that PCOS isn't as horrible as it seems, its not all doom and gloom!!
__________________ Me(26) Justin(29)
Born Jan 3rd, 2009 at 33 weeks gestation we welcomed to the world:
Sophie Anne 4lbs 6.5oz 18 3/4" long @ 10:31am
Liam Thomas 4lbs 10.5oz 18" long @ 10:41am
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Would You/Have You??? 
